Is there any intrinsic value whatsoever in the DNA or SNPs themselves? Or is it just the link between your name and your DNA that is so concerning?

It seems like you could do lots of useful things without having a name attached to any particular sample. There must be some kind of differential privacy approach here that would work well.

Can one even truly delete their DNA from 23andMe? Wouldn't deleting someone's DNA require deleting not only the existing record, but also the record from all historical back-ups too? What is to say 23andMe just doesn't flip a bit in their database and claim one's DNA is (soft) deleted?

i'm curious, what's the worst-case scenario if one were to put their whole DNA data exposed publicly? would a future civilization re-make your image? or are there societal benefits?

I signed up for 23andme to specifically make my DNA available. I believe that more DNA = more cures

Note: I'm not saying you should not delete your DNA. Do what you want over course. I'm just saying for me, I signed up, fully expected my DNA to be used to conduct research. That fact that I could get interesting graphs and some health info was just a bonus for me

When people say "data is the new oil", I think https://en.wikipedia.org/wiki/Exxon_Valdez_oil_spill

Is the best way to hasten the next bankruptcy to not delete your data?

Deleted it years ago. Don't trust any of them to actually have deleted it.

I do worry about my data with them, but when I think about the worst-case scenario - you will not get insured (or have high rates) because you have {some genetic condition}.. it seems just as likely that they will simply require my DNA to apply for insurance. (or get my DNA from a blood test within their system, etc.).

The obvious solution is with legislation for transparency and better health care system.

I started doing a relevant project https://github.com/barisozmen/securegenomics . Because I believe 23andMe event will result in people to be more wary of sharing their genetic data, and we need ways to make people able to contribute in genetic research without exposing their data.

The idea that someone who cares about their personal data should happily give it to a company as long as they are not near bankruptcy is absurd.