I don't really disagree with you but I wonder how the thwarted sense of "my body in the world" is so connected to ADHD while not being connected at all to executive functioning (which in my perception is what amphetamines help with).
I could be completely wrong, but hopefully that explains my take better. I'd be happy for someone to correct me.
Anyway, back on topic: I wonder if there are 2 specific neurodivergencies going on that got wrapped up into ADHD, but only one actually has to do with executive functioning and serotonin (the 70% that get helped by amphetamines) while the other has to do with sensory and body awareness stuff.
If they have high enough co-morbidity or are weirdly co-morbid so that we never see the body stuff unless the person has ADHD we might have a difficult time seeing them as 2 different things that might be close by brain-location or gene-expression or something.
There are murmurs around me about celiac disease being related to ADHD and autism so that would be another thing in the neurodivergent body area
I’ve also noticed I’m much less accident prone since I’ve been sober, which came a couple years later. I couldn’t say for certain which event correlates with a more pronounced improvement, but both have been quite pronounced.
That said, yes, I can still relate to bruised shins! I’m less accident prone, but still pretty far from immune.
For a few years being medicated for ADHD was a godsend. I was finally able to be more productive and focus on work, my career took off in a huge way, I've literally tripled my income since I started medication
Now I'm incredibly burned out, I've been having pretty severe memory problems, I'm on medical leave from my job to try and course correct a bit here. I don't think this is purely caused by the medication, I think it is stress related as well, but my doctor's only course of action right now is to reduce and re-evaluate my meds
On one hand, being medicated was incredible for me. It felt like it finally let me overcome my demons and be the person I wanted to be and always knew I was capable of being
On the other hand, if it led to my current situation it's probably one of the worst choices I could have ever made. I hate having massive holes in my memory like this, and being burned out this way is extremely difficult to bear
So... If you can balance things better than I could, it's still probably worth being medicated. I don't regret it I just wish it hadn't burned me out like this
My SO has severe ADHS from early childhood on and gets medicated (first ritalin, now elvanse). She is always stressed because she has a guilty conscience; she does more things every day than she has time for. She has sleeping problems.
It's such a fast-paced lifestyle that it quickly takes its toll, and it's not as if it gets better with age. Its very hard to maintain a healthy lifestyle while permanently being "all-in" into something.
I recommend giving up caffeine if you haven't done so. That alone had a much greater impact on my daily functioning than taking breaks from my medication. It took my body a week to recalibrate, but my mentality and my energy has been way more even throughout my days. The nice thing too is I can sometimes have caffeine when I feel like I can benefit from it and it actually has a positive effect rather than just keeping you barely at baseline for a few hours.
It is really nice to know there are people who give a fuck out there and I appreciate it a lot
I too got (re)diagnosed in my 30s and prescribed Concerta. Rediagnosed because my mom then told me I'd been diagnosed as a child and she just never told me. Finding the right dose took some trial and error, and to be honest "the right dose" is something that will probably vary throughout my life based on how good my non-medication ADHD management is going. But for me it's been life-changing without burning me out, and it's been almost 7 years.
I also think even without the medication the diagnosis is worth it. It clarifies your life somewhat, if there are things you have struggled with that it explains.
Yeah, I think our society views so many symptoms of ADHD as the worst type of personal failings, so I think there's a level of trauma associated with growing up undiagnosed and being consistently blamed and shamed for things that were out of your control. Even without medication, getting diagnosed was, for me, the first step towards healing and starting to unpack all that shame.
It can also help you screw yourself more thoroughly, if you use it to do bad things for you.
It's genuinely hard to describe how good it feels. But it's important to slow down and objectively evaluate how much work and time you are putting in, because burn-out is always a risk.
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Edit to add - memory holes are also a pretty common effect of high stress levels. If you really got into work and doubled or tripled down on your effort once you got medicated it could easily be causing some of the effects you are experiencing.
Considering the timing, have you considered the possibility of long COVID? I ask because the symptoms you describe are not typically associated with ADHD stimulants, but definitely are typical of post-viral syndromes [1].
My hypothesis is that people like myself, and maybe you, have adapted ourselves to being productive with our pre-medication brains. You can only do it at certain times, for short bursts, and in particular ways. It's not really in your "control" how it happens, so you come to terms with doing work when you can. Then, when you become medicated, you don't need to do that anymore. It's exhilarating. You can just work like everyone else does. The problem is that other people have lived their entire lives learning how to balance that kind of drive and we haven't, so we go overboard and grind ourselves down.
Additionally being on the meds all the time can fuck up your sleep. Sleep debt is no joke and the meds get less effective when you're tired ime. I've had memory issues as well and I chalk it up to the sleep debt almost entirely. The obvious answer is to take breaks, but it turns out you need to be able to effectively execute on the weekend too. There aren't that many viable time slots to take a vacation from responsibilities. It's such a faustian bargain and I deeply dislike that we're saddled with this bizarre maladaptation for modern life.
So I went off, and for the next 5 years I still couldn't focus. It got worse actually. I did a lot of caffeine. After COVID I started to work out and then suddenly for the first time ever I could focus. As long as I don't do caffeine, workout, and sleep I am sharp. I've done great work in the past couple years but I do feel cheated that Adderall stole time from me. I wonder where I would be with my career if I hadn't burned out.
My boss has been supportive and really helped me see the ways in which I was causing myself burnout, encouraging me (as a senior tech IC) to write things down, do more knowledge and skill transfer, and delegate more. That helped me a lot.
What I used to think of as "autonomy," which I valued so highly, following the shiny problems that made my brain happy, was more lone wolf behavior than I like to admit, and not serving me very well career-wise, as it was hard to document or sell what I was doing.
I also had to privately learn how to pace myself, setting realistic, appropriate and prioritized daily goals (nevermind the arm's-long TODO list). Checking myself against those, aiming for better goal-setting each day. Being able to close the laptop when it's done. I never really had a sense of "done" before, I had a lifetime of feeling always-behind. There's this peace, though, that comes with realizing that you _can_ prioritize effectively, do the things, then rest. That peace can become its own reward, which is bananas to me, because my unmedicated brain would never have felt that.
Speaking of which, I might never have had the head-space to work on things like this if I hadn't gotten medicated five years ago. My career has improved and stabilized. For the first time in my life I've stayed at a job for more than three years. Been promoted. Been able to see a future that doesn't just involve running from a job when things get too hard and starting again.
The side effects can be a beast, though. I wonder to myself how many more years I'll be able to manage them.
I wish you the best in finding your way back to a place that works for you.
This is exactly my experience... I'm on leave now and it's just barely past my 3 year mark at this job. And the last time I burned out this hard was also the last time I passed 3 years at a job
I feel very defective at times, for being unable to stay at a job longer than this without burning out
This is pretty much what I am working on, and I too have had followed the “burn out after getting diagnosed and medicated” arc.
Being able to set realistic, appropriate, and prioritized daily goals, and aiming for better goal-setting each day. Sounds like a good thing to aim for.,
I still don’t have a sense of “done”, and struggle to achieve that, even though I know I managed to move the needle a bit.
How long did it take you to get to this point? And how do you deal/ identify/ know you are “done”?
It took me around three to four years after starting medication to get to this point.
The "done" part comes out of setting and meeting realistic and prioritized goals. If I've done that part right, then I can feel OK about stepping away. How to set those goals is the harder part.
Tasks with time-constraints have to be identified and dealt with, such as "prep for meeting with product team." Identifying them means looking ahead on the calendar (not always easy for ADHD'ers!), and getting out of ADHD magical thinking about "just needing a few minutes before" to prep sufficiently. That might mean scheduling a half hour block for prep on the calendar. As a bonus, being aware of what's coming up next is always a good thing.
Open-ended tasks and independent work are harder to clarify and prioritize, but I got the greatest reward when I started attempting to describe what I was doing at my team's daily standup meetings. I might be spending weeks on writing some document, which can feel endlessly the same, but I force myself to not have the update everyday be "worked on the document," but rather:
> I researched topic X and spoke to people A, B and C to try and answer this question I had, and learned this thing
or
> finished drafting section X, editing section Y and started on section Z
Then it becomes much easier to keep track of the longer journey through writing that document. In addition, writing the description for other people helps make that easier.
Breaking the description down also helps you notice when you're stuck, because your daily descriptions start to sound the same. If you notice that sameness, but then ask yourself "if I say _____ today, what will I be able to say that's different tomorrow" then automatically you'll start to get more specific, have better updates, pace yourself better, and as a bonus you have an idea of what you'll do the next day.
Using the above tactics, I started to use standups to pace myself and feel better about my work (more "done"), whereas I used to become full of anxiety and guilt for not feeling like I could report "progress" day over day. It was all a mindset shift.
Also found out after I quit that it also probably contributed to an anuersym in my heart.
Highly recommend anyone to stay the hell away from amphetamines if at all possible.
> Drug treatment for ADHD was associated with beneficial effects in reducing the risks of suicidal behaviours, substance misuse, transport accidents, and criminality but not accidental injuries when considering first event rate. The risk reductions were more pronounced for recurrent events, with reduced rates for all five outcomes. This target trial emulation study using national register data provides evidence that is representative of patients in routine clinical settings.
Through my attempts, I've been told they don't really do adult adhd diagnoses without documentation of issues as a kid. I was recommended Wellbutrin to deal with symptoms in 2017. Got onto adderall when I moved health insurance in 2021. Back to Kaiser in 2024, I was routed to the same psychiatrist who once again wouldn't budge on adderall and once again recommended Welbutrin.
I used an online clinic to get my assessment (which I understand isn't taken seriously) which is what she cited. I asked what aspect of the assessment documentation did she think left me unqualified and she cited marijuana use in 2016. I asked her how she squares the fact that I'm an adult professional that makes comparable money to her, I have experience using both wellbutrin and adderall and see the former doing nothing and the latter helping, there's hundreds of times more evidence for adderall efficacy vs the flakey data on wellbutrin... She responded with something like: "I believe in my heart of hearts that what I am doing is right".
I thought the entire situation was kind of insane. Further research into the person makes me think they're a bit of a loon.
As if a neurodevelopmental disorder just magically vanishes when you hit age of majority.
It's pretty wild that despite it being a disorder that has been documented for hundreds of years, people still make the argument that people are just lying.
Apparently showing up in the DSM has fixed fuckall.
The whole process became so burdensome I just gave up and now I self medicate with Nicotine pouches.
Not proud of it and probably not the best alternative but it helps me focus and keeps me out of the stress of the constant back and forth that healthcare providers put you through.
I'm now on a PPO plan and have been using Vyvanse for over a year now. It's lead to a dramatic improvement in my quality of life. I grieved for the time and opportunities I had lost due to not having been diagnosed and treated in childhood.
HMOs have a lot of upsides, but Kaiser's behavioral healthcare is awful (at least in the DC Metro area) and there's not much recourse unless you want to/can afford to pay out of pocket.
There's so much cynicism about ADHD even existing, even among healthcare professionals. Any time on HN any mention of ADHD seems to invite a lot of cynicism as well. That, compounded with that one of the most effective treatments for it is something that pretty much everyone can see a positive effect from (stimulant medication), makes it really difficult to navigate.
I hope that you can find a better option because it seems like Kaiser is just very antagonistic towards ADHD.
It was the best thing that has happened to me in years. Inpatient psychiatrist disagreed with the bipolar diagnosis and said that inpatient care was a safe space so we could try Adderall and a different antidepressant (Lexapro). On Adderall I feel calmer, less anxious, and if I’m tired it actually puts me to sleep, which is all in line with ADHD patients. I can focus at work again and have my life back.
I don’t feel like I’ve “lost” anything on Adderall, I would describe my experience with ADHD as having a buggy thread scheduler that would overallocate CPU time to background threads. On Adderall I feel like I have control again. I can still daydream, but all 5 trains of thought are not trying to enter the station at the same time.
I’ve had 3 different Kaiser psychiatrists and all have been sub-par, refusing to re-visit prior diagnoses, being aggressive and overly rigid in their own opinions, and sometimes just being plain incompetent. My recommendation is to seek mental health care from somewhere outside Kaiser that accepts Kaiser insurance. Kaiser’s mental health division is oversubscribed and probably underpaid. Overall our experience with Kaiser has been that no matter which division you’re dealing with, you have to be pushy and advocate for yourself or they’ll just slap the easy label on you and throw medications at the problem that may or may not actually address the root cause.
I’m very open about my experience because mental health issues are highly stigmatized in this country and there are a lot of people who don’t get the care they need. Accepting that I needed inpatient care was one of the most difficult things I’ve ever done, but coming out the other side it was nothing but a positive experience and I feel like I have my life back.
"I believe in my heart of hearts you suck at your job as a psychiatrist."
Downside is you have to absolutely avoid grapefruit unless you want to find out what bradycardia feels like.
I was diagnosed by a non-Kaiser psychiatrist I found on my own. After trying different prescriptions, we eventually settled on Concerta. I stayed on that (and continued seeing the same psychiatrist, whose service I paid for out of pocket) for about 4 years.
Then my psychiatrist had some family stuff come up and had to move out of California. Since she was no longer going to be licensed here, she couldn't keep prescribing my meds to me. But she was able to write a letter describing my situation and laying out how she'd arrived at the prescription I was on, with particular emphasis on the fact that she hadn't seen any evidence of misuse on my part. I gave that letter to my Kaiser primary care doctor, who agreed to take over the prescription. After that I was able to get my meds from Kaiser each month without any issues.
I imagine this kind of setup depends on your primary care doctor; I may have just gotten lucky with mine.
Yep. It appears to be different by region. When I left the bay area and moved to a different kaiser region, they didn't accept any of the medical history from the bay and I had to start over again. Yes, I did have the prescribing pshyc from the bay area send the detailed clinical notes to kaiser but because I didn't take _their preferred_ computer diagnostic tests, I had to start over. Nevermind that the psych I was seeing in the bay area has been treating ADHD since Reagan was in office, the computer test was worth more than the medical professional's experience and opinion!
I have driven up to 6 hours at a time, but I'm in hyper-focus mode the whole time and it takes everything I have to stay locked into that focus so I don't die. I think all the time about moving somewhere where I don't need a car. I hate driving and always have.
I recently found out I have ADHD. I haven't tried meds yet (but am having my first meeting with someone tomorrow to explore it as an option). I'm wondering if this will make driving more tolerable for me. It wasn't even something I thought about before this thread.
However, as I made that drive more, it got worse. Traffic was usually heavier, and things didn’t go as well with a lot of traffic. Some of it was how it acted, and some of it were trust issues with it. When traffic picked up or other cars did things around me, I’d switch back to manual control. After a while, I was using manual control the whole time… and then eventually just took the train, because I couldn’t tolerate driving myself anymore.
To be honest, now that I'm medicated I think I could at least do 5 hours without stopping. I might need some snacks though - the amount of sugar I've been consuming lately is unnatural
Having a car with lane centering cruise control also helps a ton, at least where I live. Not having to micro-manage a car for several hours when you're on a long drive reduces the cognitive load.
(I suspect ADHD pilots would handle takeoff and landing very well, as well as emergencies, but oh god the checklists and schedules and that whole middle part of the flight…)
Yeah, it's an issue! To the best of my understanding, it's not a mark against you if you have had treatment in the past. You can't have a valid license and be taking active treatment, though.
The justification is that treatment for people with ADHD markedly reduces accidents and suicidality, and that banning the drug outright would do more harm than would come from liars getting the drug and harming sports.
The whole process is a complete and total scam that's not making anything or anyone any safer.
I never related to "time blindness" because I was always consistently early for things, but really I was just deeply anxious about being on time for things. I would set like 10 alarms set, I wouldn't be able to do anything for an hour or two beforehand because I was worried about being late, and I'd usually show up way too early because I couldn't actually estimate when I needed to start getting ready to be on time. That doesn't exactly sound like the behavior of someone with a functional inner clock.
One of the more non-rewarding things can be deadlines, especially destructive ones.
We may both even have 5 similar symptoms caused by different things
The "clumsy" aspect is similar. I'm not clumsy. My balance and coordination are a little above average based on observations like rock hopping to cross streams while hiking.
On the other hand I had a hell of a time getting used to the parry sequences in Expedition 33. It felt at times like they were intentionally trying to fool me into parrying at the wrong times based on visual cues. Which... they were. The auditory cues were more reliable and once I got used to that I breezed through the rest of the game.
I ask because FPS gameplay contains a whole host of different skills, including the precision of your movements, the ability to accurately predict and track the enemy’s position on screen, as well as your reaction times, sequencing movements and so on. Potentially you could be exceptionally good at some of these and unusually bad at others and still emerge as a good FPS player.
Fighting games are a bit more pure, leaning more heavily on reaction times, timing and sequencing of moves.
Recent understanding of dyslexia is that it’s actually a kind of sequencing problem in the brain. I wonder if this is more descriptive of the issues faced by ADHDers?
I am absolutely wildly impulsive (and was even more so when I was younger), but when I took the reaction time test in college, I was playing counterstrike multiple hours a day. I tested in whatever the "in between" area was on that for impulsivity. None of the people I knew that played twitch games a lot got a positive result on that test.
I’ll watch that for sure as I’ve always felt very uneasy, and a little indignant, listening to Mate talk about ADHD; but I’ve never been able to put my finger on why exactly!
As many have said in this thread, most doctors will tell you to go away or give you Welbutrin (which works poorly, if at all). I feel for your struggle.
I have episodic psychosis. It’s not something that happens every day. And I’m seeming to manage it with some genetic and nutritional understanding I have of myself so it’s not that much of a problem anymore. I just have to be careful with Covid because both times I had Covid I had the worst psychosis of my life.
All my disorders are mostly due to a CBS Deficiency.
The problem is that Schedule 3 meds can't be shipped and must be picked up in person at the pharmacy (where driver's license # must be entered in an extra procedure not required for other meds). Health plan pharmacies have lines, don't have drug store hours and aren't on every corner. The combo of "in person pickup" + "30 day limit", which were enacted by different people at different times for different reasons creates life disruption and a massive waste of time, energy and money (we're all paying for this in increased prices). I've been on these same meds like clockwork for decades. In such cases they should relax either "in person pickup" or "30 day limit" but, we all know, it won't happen.
And if I need to travel on a trip or vacation for a week or two, with the 30-day limit there's a 25-50% chance I'll run out of meds and getting special dispensation to refill early requires contacting and coordinating the doctor and pharmacist in a non-automated, out-of-band loop. There's a two day automatic grace period to account for the pharmacy being closed on weekends but when my 30-day window falls on a weekend, I now have to coordinate pickup on an exact day - like I don't have a life outside of this bullshit. All just to get the meds which help me function normally.
Being forced to deal with all this for years has made it so I understand the health plan's back-end IT system capabilities (and lack thereof) better than most of their employees. It's still inconvenient for me but I'm one of the lucky ones. My meds are dialed-in and working, I have a flexible schedule and can parse bureaucratic systems. I got diagnosed and stable on my meds back before every ADHD patient was automatically considered a suspected drug abuser - which is ironic because I've never even had a drink, much less used illicit drugs (ADHD and alcohol/rec drugs tend not to mix well and I was diagnosed as a child). Which makes it meta-ironic I'm required to have a drug screen blood test every year to verify I am taking my prescribed drugs and not selling them - as if I got diagnosed in 4th grade as the ultimate long con knowing these meds would become street drugs worth a buck a pill decades later. I can't imagine a new ADHD patient still struggling to find the right med and dosage trying to figure all this out without giving up.
But it's already a C/II class medication so the name on the Rx has to match the name on the photo ID and the pharmacy has to keep the records / there are rules for how often C/II medications can be dispensed. If you have a 30d Rx, the soonest you can come back with an Rx for that same medication is ~25d.
Regardless, does it matter if I have to re-fill every 30d or every 90d? As long as I'm only in there every 80d to get my 90d supply topped up, how is that any different from a 2d Rx or a 30d Rx being filled every 1d or every 25d?
Insurance doesn’t cover 90 day bottles so it was $300/mo but worth it.
Nowadays there’s generic Vyvanse which is much cheaper so it probably makes 90 day prescriptions financially viable?
I just moved back to the US and had to find a new local doctor who gives me 30 day scripts so I haven’t asked about 90 day yet. I imagine these pill mills are pretty stingy. It takes a lot of time and calling around to find docs who don’t treat you like a fiend in some way.
But we need to count our blessings. People on pain killers need to put up with crazy shit like getting randomly summoned to the office so they can count your remaining pills.
You may have difficultly getting a 90 day, both the doc and pharmacist have to agree to do it - 3x30 day with 'fill on dates' is more likely.
When I had a long out of town trip I was able to get a 60 day script. When I came back the doc sent 60 day script again but the pharmacist wouldn't fill it and only allowed it because what ever code/note the doc added about long term travel. That was self pay so I wasn't even a risk for selling it. Some states won't allow more than 3x30 day.
I am surprised you got name brand vyvanse for $300/month, generic is ~$250/month without coupons/discount cards
Now I go to some "psychiatrist" pill mill where they made me take a BS $200 computer test to diagnose me with ADHD (CYA even though I've been taking this drug for 16 years) and they ask me the same goofy questions every televisit (probably more CYA).
Yeah, it was $1000-1200 for 90 pills of Vyvanse all that time. GoodRX only knocked it down $200 or so. And the website coupon only applies to 30-day.
Now with insurance, Vyvanse is $100 for 30 while generic is $10.
I don't trust the post office enough to bother.
It is only recently that over the counter birth control and/or three month allotments have been available.
For stimulants, they can't do an electronic refill, so I literally had to go to my doctor, get a paper prescription, then drop it off at the pharmacy, then come back a few days later (because it's usually backordered) every 30 days.
Some doctors would write 3 prescriptions with a "not before" date, but others were not willing to do so.
Of course, it wouldn't surprise me if hormonal birth control were to be Federally banned before this White House is done.
Nice joke really, even after I started earning more after the internship period ended it was just too annoying so I stopped entirely, instead since it was work from home I literally spent 24/7 trying to finish my work so basically, "working" (if you have adhd you know that while you procrastinate, you aren't actually "relaxed" enough to go play games or whatever so it'd basically still being in work mode mentally) 16 hours a day.
(Glycinate or threonate, not oxide.)
For the last few years I think the actual medication I take changes every month. Is it just amphetamine? Just dextroamphetamine? Both (like Adderall)? These aren't the same and effectiveness is at different dosages. And then I got to figure out how to adjust to the specific version and batch as the manufacturing tolerance is within sensitivity range. Not to mention food interactions. And most of this is a solvable problem!
Not sure what the correct solution is, but on the one hand we don't want doctors to overprescribe, but on the other hand we want doctors to liberally prescribe without re-checks to make it easier for those who need it to get their meds. That would seem to put providers in a bind.
And you get to do that every months. And you can't get a prescription earlier, you have to wait a full month. So, essentially: Right when you're forced off your medication that helps your executive function, you need to exercise large amounts of executive function.
It's massively stupid.
The meds themselves have dramatically improved my life by being more capable of getting tasks and work done. Main downside is the drop off around 8/9pm when I become really tired and unfocused.
Talk to your prescribing psych about this. More, but smaller, doses throughout the day may be a way around this. Diet and changing when I medicate helped me a ton. I got another few hours per day out of my meds just by splitting the medication up and administering every few hours, timed just before/after lunch.
You do still need to acknowledge / accept that the medication can't be a 24x7/forever cure though; that crash back to sub-optimal levels of function and abundant distractability is inevitable :(.
For folks who are also looking, the search term "adhd meds call around service" seems to work. I'd list URLs, but I haven't used any and don't want to endorse.
Like most things associated with drug criminality, the rules are stupid and capricious.
"Yes, the government is responsible for these awful things. But if it was responsible for even more things, it would be different and good, because someone told me it would!"
No you’re not. You’re not doing that at all.
You’re just posting “Hey, you know that thing nobody said? What if you believed this thing I just made up? Even though I know you did not, you would surely look pretty silly if you also came up with this wrong thing that I thought of in my head. Just picture what a buffoon you would be if you said something completely different than what you said. I am imagining you doing that and it is very pleasing to me. You look quite the fool and I quite the razor-sharp wit in this scenario that never happened but I am envisioning anyway”
It is nonsense, quite literally gibberish. “What if we had an argument and I was right and you were wrong how would that feel” isn’t an argument or a point. It is a dream that you’ve decided to volunteer unprompted that you fantasize about.
It is like someone bringing up a new pair of running shoes and you interjecting with your thoughts about the eroticism of feet.
My work insurance seems to change all the time, and while going through GoodRx doesn't count towards my deductible, I prefer the price stability. Not fun when I'm randomly told it's $120 now at the pharmacy because my insurance doesn't cover it now for some fucking inane reason. A few phone calls can often resolve it, but it's the last thing I want to do when I'm a day away from withdrawals kicking in. Even more absurd is this is basically guaranteed to happen more than once a year, THERE IS ONLY 12 MONTHS IN A YEAR!
my psych kept giving me everything by Adderall. So I went to one of those online doctors and got Adderall through her.
Then I just told my psychiatrist that I have Adderall prescription and she took it over.
For the record, she’s actually really reasonable and I like her but very conservative about the stimulants. Which when I finally got them were a revelation. Medication that actually works.
There are a few providers out there. The DEA is cracking down on them (they call them "pill mills") and that crackdown is - depending on who you ask - partially/fully responsible for the stimulant shortages the past few years. The /r/ADHD sub has some good discussion(s) from time to time on the latest action(s) taken by the DEA.
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When I was seeing medical help to confirm or refine my suspected/self-diagnosed ADHD, it was a _pain_ to jump through all the hoops. I was nervous getting my first Rx filled but oh my god was it a night and day difference. Within 45 min, it was _clear_ that the medication was working ... exactly how it's supposed to for people with ADHD. That "validation" was my prize for attempting to navigate the american health care system.
If I could have replaced dozens of hours / 6+ months of phone-tag/paperwork/assessments for a monthly subscription and a 30 min video call, I'd have jumped at the chance.
Australia has been experiencing psychostimulant shortages in recent years, but they haven’t been due to the DEA (or Australian equivalent thereof-most of the DEA’s functions are state government responsibilities in Australia), they’ve been explained as due to manufacturing issues and growing demand - https://www1.racgp.org.au/newsgp/clinical/further-adhd-medic... - while I totally believe the US is facing additional issues due to its own regulatory regime, if Australia is having supply issues independent of that factor, why wouldn’t the US too?
Since controlled substances prescribing is a state issue in Australia, each state has its own policies - but I know my state (NSW) has been loosening regulation not tightening it - https://www1.racgp.org.au/newsgp/clinical/first-phase-of-gp-...
The biggest cause of Australia's lisdexamfetamine supply issues isn't the DEA, it is patent law – the US patent expired in 2023, the Australian patent doesn't expire until 2028, which gives Takeda a continuing near-monopoly on lisdexamfetamine in the Australian market – so if Takeda is having problems meeting the growing demand, it is legally very difficult for other firms to step in. The TGA did for a period allow emergency parallel import – but I don't know if that included generics, and my own experience was it wasn't clear how to even access it – my impression is that for most patients it was more of a theoretical allowance than something practically helpful to them.
I think the biggest thing the DEA is doing here is damaging the US' own pharmaceutical manufacturing industry by pushing controlled substances production out of the US and into friendlier countries in Europe and Asia. The DEA can't cause any lasting issues with controlled substances availability in Australia because their jurisdiction is legally limited to the United States. Even if we suppose the DEA may have temporarily contributed to supply issues in Australia – surely equal blame lies at Takeda for being too slow at moving manufacturing out of the US.
That may be technically true, or perhaps it's just a false assertion included in the document dump. But AFAIU the issue is that the DEA tightly controls production and distribution of bulk amphetamines. There's just not a global quota, but per manufacturer quotas as well as requirements for allocation for each product. For example, the DEA sets a supply quota for 40mg pill production separate from a 50mg prescription. So if a particular manufacturers supply for 40mg pills is exhausted but they have tons for 50mg pills, too bad unless and until you go through an onerous process with the DEA to reallocate. It gets even worse across manufacturers. If manufacturer A has to shut down their production facility for some reason, manufacturers B and C can't easily pick up the slack. That's because reallocation of amphetamine supply to another manufacturer not only requires navigating a bureaucracy (that the DEA may very well slow walk given their present attitude), but it requires manufacturer A to voluntarily relinquish their quota, which they never do as there's zero benefit to them.
TL;DR: Technically global supply is more than adequate, but DEA rules, which effectively operate extraterritorially, create huge distribution problems. So the DEA can technically claim quotas aren't the problem, but that's at best highly misleading. If manufacturer A has to shutdown production (which, from the document, seems to have been one of the issues with Takeda), the end result is less production even though other manufacturers could theoretically pick up the slack.
There is no global quota. There are national quotas set by every country's government. US law nominates the DEA as the agency which does that for the US. Each country's government reports their national quotas to a UN agency (the INCB), but the UN agency has no power over them – at the very worst, they might criticise your quotas, but probably not even that; and more powerful countries (not just the US, even middle powers like Australia) can ignore what UN bureaucrats think with impunity – some poor developing country it may be a different story, especially if aid decisions are tied to getting a "good report card" from those bureaucracies.
And while for the DEA, setting these quotas is part of some grand moral/ideological crusade, for EU governments and Australia it is just technocratic paperwork – so of course those governments approach the issue much more reasonably than the DEA does.
> but DEA rules, which effectively operate extraterritorially, create huge distribution problems.
I don't see how they do. Lisdexamfetamine sold in Australia is manufactured by Takeda in Germany and Ireland. The DEA lacks jurisdiction over what a Japanese company does in EU and Australia. Although the drug was originally developed in the US, the Australian patent is currently owned by the Japanese parent company, not its American subsidiary, while the American subsidiary owns the "Vyvanse" trademark in Australia; anyway, DEA jurisdiction is based on manufacture in the US or US import/export, not country of development or IP ownership.
> If manufacturer A has to shutdown production (which, from the document, seems to have been one of the issues with Takeda), the end result is less production even though other manufacturers could theoretically pick up the slack.
In Australia's case they can't because lisdexamfetamine is still under patent, so other manufacturers are illegal – not because of the DEA, because Takeda will sue them. Takeda could license other manufacturers voluntarily, but why would they do that? That might be great for patients, but probably not so great for their shareholders.
I'm no fan of the DEA, but blaming the DEA for something that happens in Australia appeals to people emotionally even if it isn't true, whereas blaming patent law and the business decisions of a Japanese corporation is more truthful but less emotionally satisfying.
Medicine really has a bad problem with groupthink. To get the best healthcare you have to both trust physicians and be critical of them.
Then the DEA seems to consider stimulants as a moral failing.
I’ve been off Concerta for 3-4 years now because it was so difficult to keep my productivity up when the pharmacies near me ran out due to the unpublished extra-legal DEA caps on stimulants.
Luckily even have been on Concerta has helped me learn how to manage my ADHD a bit better. It also gave me the chance to heal some of the worst traumas due to undiagnosed ADHD.
The end result is that i tends to make the public regard science as something that they are told by experts, so then it becomes a matter of which experts they trust. This ultimately undermines trust in science because some expert opinions turn out to be wrong.
We really need better science communication, which will not happen when the media want sensation, politicians want spin, and the public believe either the media or ChatGPT or some random nutcase on Tiktok.
Non-specialists in any field cannot understand everything, but I think good communication could still do a lot of effective explaining of evidence.
Your psychiatrist is trying to deal with the DEA monitoring, and doesn't want to be the one who first puts you on it, but continuing an existing Rx is not treated the same by the DEA, as I understand it. So the online doc is putting her license more at risk to a DEA investigation, but your in-person doctor is less exposed.
N.B. this is how I understand the things that my wife has said to me. She is actually a pharmacist who has to deal with these things, and I might have garbled something.
And I started taking it as an adult. So I had 4 or 5 ADHD diagnoses under my belt.
I was on various forms of prescribed amphetimines for years and developed paranoia. It took me a few years to somewhat recover. My family has PTSD about that period of my life. I can’t think or communicate well anymore. Fuck that industry.
Funding info is at the bottom of the article, the project was primarily funded by the Swedish government.
> LZ is supported by ìShizu Matsumuraîs Donation (2024-02228) and KI Research Grants (024-02570). LL was supported by the Swedish Heart-Lung Foundation (20230452), the Söderström König Foundation, and Fredrik och Ingrid Thurings Stiftelse. BD was supported by a grant from the American Foundation for Suicide Prevention (AFSP). SC, National Institute for Health and Care Research (NIHR) research professor (NIHR303122), is funded by the NIHR for this research project.
It may be none of them. It may be all of them. There could be corruption. There could be subtle manipulation. You have no idea how much money there is in the industry. They make things happen.
Some in the medical profession believe that these abused drugs are safe for their patients. Others know better but they still prescribe them. Some pharmacists will tell you that they’re good for your brain because they increase blood flow, because that’s what they’ve been sold by the reps and the studies they’re fed.
In any case, paranoia is a known potential (but rare) side effect, its not like pharma companies were keeping this a secret.
I knew someone that worked for the tobacco industry where they had labs that constantly were looking for reasons that tobacco was good for you. It meets your qualifications for properly designed studies, but it was purely about trying to convince convinced others that a known addictive substance that caused emphysema and lung cancer was beneficial to your health.
Something similar happened in the weed industry, though it it’s proponents were initially just people that wanted pot to be free for anyone to grow, and then it got taken over by capitalists that didn’t mind using massive amounts of energy to fund vertical gardening, or genetically modify yeast to create THC, or to genetically modify the plant itself to produce an untested derivative of it that would meet the qualifications for hemp products, and then peddle it to teenagers at massive doses without control, pairing it with sugar-free sweeteners and causing serious health problems like uncontrollable vomit coughing, basically inventing a new disease from scratch.
You probably didn’t mean to add “convinced”.
https://truthinitiative.org/research-resources/tobacco-indus...
https://pmc.ncbi.nlm.nih.gov/articles/PMC2564674/#:~:text=In...
> massive amounts of energy to fund vertical gardening
You probably instead meant “massive amounts of energy in vertical gardening”.
https://www.nature.com/articles/s41893-021-00691-w
https://pmc.ncbi.nlm.nih.gov/articles/PMC8349047/#:~:text=Ho...
If you're implying publication bias, that's addressed by preregistration, though you either have to be careful about looking it up or else rely on meta-analysis.
Otherwise if they're publishing true results then there you go. Nicotine does have some benefits; it's basically the only effective nootropic and it's pretty effective for schizophrenia which is why almost all schizophrenic people are smokers. Of course the problem is it's super addictive and all the ways of taking it give you cancer.
In my experience it's more because the conclusions butt up against the persons personal beliefs or experiences (like OP's)
I know that I process Adderall differently having ADHD, but I still struggle to see how it's used recreationally. I took it somewhat consistently for over a year for ADHD treatment until I missed an appointment and couldn't get around to scheduling another before my prescription ran out. After that getting back on became more trouble than it was worth. Not once did I ever feel a high from Adderall. My best naps were on Adderall. Not once after dropping it did I ever feel withdrawals or the urge to take more. The only thing I felt while taking it was constant dry mouth and my brain no longer constantly jumped between topics outside of my control.
My brother abuses controlled substances. When I told him I was taking Adderall he warned me to be careful and talked about his issues with it and I just couldn't relate at all. I'm no stranger to addiction. I'm an alcoholic and am addicted to nicotine via fruity vapes. But Adderall? Nothing at all.
I think people just like saying this because they're afraid stimulants will get banned otherwise.
That's why just having them illegal makes them 100x more dangerous. Through less knowledge among users, no guidance on packaging and difficult to identify the substance if someone had to be taken to the hospital.
Adderall causes me to be essentially unable to move or function. When I tried it, I was very hungry but I couldn't get myself out of bed to get food so I had to sleep it off! Pure dextroamphetamine works a treat for me though.
there are maybe 10% of people getting not focused and awake of adderal.
But "adhd brain reacts different then regular brain" is not true. For both its 20x dopamin release in 8 hours.
So no. Maybe if I try a récréative drug will I have my adhd multiplied, but here it’s not. I think it should have been fun while younger discovering that amphetamine could quiet me when everyone was dancing under the influence.
It’s not perfect. No medication are. If you abuse it, take it without need… yeah it can be abused. Don’t try heart medication either. Or lithium for kicks. Or…
That means very little. Do you think all people react the same way to all medications? If someone takes an SSRI and it doesn't work, then does that mean they do not have depression, anxiety, or whatever the medication is indicated for? Do opioids only work for people with chronic pain?
As someone with ADHD, it's extremely common for people with ADHD to think they are some sort of rare subspecies of humans where everything different in their life is due to ADHD. In all aspects of life, people with ADHD are far closer to normal than they might want to believe. It's why people even doubt the existence of ADHD at times. I've yet to see anyone seriously doubt the existence of Schizophrenia, for example.
It's like saying that engines with fuel and engines with no fuel respond the same way to adding fuel: it increases the length of time they will run.
Stop adding fuel and the resulting system behaviour will be quite different.
I've heard it described as a difference in magnitude. If a person with ADHD has an arbitrary "focus" score of 5/10, and a normal person has a focus score of 8/10. If a stimulant brings them both up to a score of 9/10, then the effects may appear more noticeable in the ADHD person because a 4 point jump is typically far more apparent than a 1 point jump.
- Adderall keeps you awake. Some people use that to be awake for very long periods of time. Long drives, marathons, etc.
- Adderall can make boring tasks seem engaging, so it can be used, for example, to help a student study. Combining that with no need to sleep that night, can become a bit of an unfair advantage.
- Adderall can cause a high, even though I've only ever experienced that with pure dextroamphetamine. For me it caused everything to feel warm and pleasurable somehow, the first couple weeks I was taking it.
Now I feel nothing except the wakefulness, although when I stop taking it for a while and then start taking it again, sometimes I will spontaneously do every chore that's been building up over the past months in a single day. That's just how it goes for me apparently.
For many (not all) ADHD'ers, amphetamine or caffeine makes them sleepy.
> Adderall can make boring tasks seem engaging
This is true
> so it can be used, for example, to help a student study ... can become a bit of an unfair advantage
Unfair? This isn't sports. Nobody is being cheated by a study-enhancing drug.
> Adderall can cause a high, even though I've only ever experienced that with pure dextroamphetamine. For me it caused everything to feel warm and pleasurable somehow, the first couple weeks I was taking it.
Interesting. FYI ADHD people feel none of that. If anything, the opposite: on stimulants ADHD people feel relaxed and normal, bringing them down from hyperactivity and allowing them to focus on their life.
You're right, I was mainly speaking about people without ADHD using stimulants.
> Unfair? This isn't sports. Nobody is being cheated by a study-enhancing drug.
No, but it can lead to bad health effects for the student, and bad habits like dependence.
> Interesting. FYI ADHD people feel none of that.
I guess my ADHD diagnosis must be mistaken then? And my executive dysfunction must come from somewhere else...
ADHD is not a single neurotype. As even the most basic example, multiple different expressions of autism can each have ADHD.
> on stimulants ADHD people feel relaxed and normal, bringing them down from hyperactivity and allowing them to focus on their life.
Stimulants still help me regulate my sleep cycle and focus, but I don't think I experience hyperactivity from not being on them. (anymore at least; when I was younger I almost couldn't sleep without melatonin. That resolved itself before I ever touched stimulants, though.)
--
I have heard of people with undiagnosed ADHD self-medicating with meth. Slightly different than people without ADHD using stimulants recreationally. I personally hope to never touch meth because I heard it can ruin one's relationship with other stimulants, and I don't want my medication to become any sort of recreational thing because I need to depend on it and not seek highs, but I feel like self-medication can be perfectly valid if someone knows what they are doing. Big if though.
I missed on first read that you said the stimulants only had that high for the first few weeks though. That sounds different from what I understand to be the neurotypical response.
> Stimulants still help me regulate my sleep cycle and focus, but I don't think I experience hyperactivity from not being on them.
You may have the distracted variation rather than hyperactive.
Well, I do have a dissociative disorder. Though I'm fairly sure I would be ADHD combined type, because I do have extremely hyperactive moments.
By the way, "the distracted variation" is called inattentive.
> Interesting. FYI ADHD people feel none of that.
Please don't speak for a whole group of people when you don't know what you're talking about. Euphoria is very common when people with ADHD first start taking amphetamines, it just goes away after a week or so.
That is common myth. It's a matter of dosage over time. If one takes 120mg of Adderall in one go, then I can assure you they will not be calm nor relaxed. The relaxed feeling comes with a build of tolerance over time and with the lowest therapeutic dosage possible.
I won't deny that people with ADHD might perceive more benefits from stimulants than those without ADHD. I person with poor vision probably would perceive more benefit from eyeglass than I do with 20/20 vision. The glasses work the same for both of us, I just don't benefit from the effects. Also, stimulants do not work for about 10%-30% of people with ADHD, and if the reactions were truly that different, then there would be no controversy about testing for ADHD. It'd be as simple as just examining the effects of a pill.
In the beginning, I felt euphoric from stimulants and I am ADHD as they come. On the rare occasion, I still might get hit with a glimpse of it. Though that is typically after I take a break from medication for some time.
Back when I was in college, I cannot tell you how many people I knew with legitimate ADHD that used to rail Adderall and Adderall XR pills (yes, the XR are just as easy to abuse).
Check out this subreddit if you care. Search for the term "ADHD" and you will see how the medication affects a portion of the ADHD population:
If one takes 120mg of Adderall in one go, and they don't have a tolerance, I'd be surprised if their heart doesn't explode.
If you have good vision you do not benefit from glasses. In fact it makes things worse, as those with good vision are able to use their eye muscles to adjust focus but the glasses make that harder.
Doubling one's dosage does not mean much without stating the prescribed dosage. 5mg => 10mg is much different than 60mg => 120mg.
Also, the euphoric high tends to become lessened the longer one is on stimulants, even if the dosage is increased, due to neuroadaptation, i.e., a decrease in dopamine receptor availability and changes to downstream signaling effects of dopamine transmission.
Increasing the dosage on the second day of medication vs second year of medication may likely have significantly different effects in regards to the presence of euphoria.
I'm more than a little pissed that governments don't let us use drugs like this responsibly.
I mean yes. Proper education and harm reduction is vastly superior to this "controlled substances" bullshit.
But lifted mood and energy is why it's taken recreationally, the euphoria can then come what you make from that.
An ADHD’er I know who did the same thing, took a nap instead, and then actually started their taxes.
These are not the same thing.
I could use some more euphoria in my life, sadly Adderall does not provide it (for me.)
If it would make people hyperactive it wouldnt be used for learning and sitting there 16h hyperfocused.
IMHO
edit: to explain better. imagine a adhd brain having dopamin swings between -1 and +1. While there are those swings people cant execute their plans and cant focus on one goal. when you give them adderal or similar they get a powerboost to blasting +2 dopamin lvl and can keep that for hours.
so if you give a regular human beeing the same amount of adderall it will blast its brain on +2lvl dopamin also.
so adhd people and regular people behave the samw on adderall.
the thing with adhd it is not a lack of dopamin but an iregular flow of dopamin that is the problem. The solution is to hypercharge the brain with dopamin to get constant lvl.
The other thing on top of limiting its production, it's not just for the US, it's worldwide.
Australia has a shortage of various types of ADHD medication due to this DEA production limit too.
https://www.tga.gov.au/safety/shortages/information-about-ma...
Also, the Australian Government requested increased production to cover these shortages, and the DEA rejected that request.
So those limitations have a worldwide effect due to the US being one of only a few countries that produce these drugs.
- Skilled workforce
- Risk capital
- Regulatory overhead
Opioids however…
What abuse are they seeing with adderall? What I hear in casual conversations is that people are abusing it to learn things. Is that what the DEA was seeing too?
It is a strong stimulant (more like cocaine than like coffee) and potentially addictive so potentially dangerous and requires medical supervision.
it is a formulation of amphetamine.
Would be pretty dumb to use your months dosage for 3 days of partying
> Would be pretty dumb to use your months dosage for 3 days of partying
It would be, but people can be pretty stupid. I know personally of a case where kids were sharing their doses.
It would never happen. So it must be much less appealing than cocaine.
Probably accounts that were similar to these:
[1] - https://hackernoon.com/the-parable-of-the-paperclip-maximize...
From what you’ve written, she didn’t treat your actual condition and thus put you through needless suffering and placed your health at risk.
Every time I realize it's Friday and I'm gonna run out of medication because I forgot to call in the refill I think about that. Three day weekends are the worst.
One workaround I've heard is that you order every 30 days even if you forgot to take your pills one or two times. Any surplus pills go into an old bottle you hide in the back of a drawer. You only ever withdraw when you've fucked up your re-order.
Or so I've heard.
What we need is for these pills to be compounded the way they do opioids: the wax granules are arranged to attempt to keep you from getting a burst dose by crushing the pills. The same process that makes crushing work makes splitting not work. So if you make split pills still time release, no problem.
But not for saving pills. Some people are exquisitely sensitive to these medications and you need 25mg per day but it only comes in multiples of 10 up to 50. So you’d like to split a 50 and take 1/2 pill per day. Also the 40mg often costs only 30-40% more than the 20.
Hard focus work could make it work shorter, but also some have metabolism so quick that they burn through medication. That's controlled by doctors so no worries, but I know people who take IR forms every 2 hours, and for those XR forms don't work at all (as it's like 2 complete cycles with all side effects).
you can simply measure the grains with a scale and separate some fraction.
I know a few people with crippling ADHD that have managed to hire a "life coach" of sorts to help. Takes a bit of screening to find somebody that knows ADHD and how to help with it versus the more generic/useless skills you probably first thought of when you read 'life coach' :).
> Every time I realize it's Friday and I'm gonna run out of medication because I forgot to call in the refill I think about that.
We all have to develop our own coping / survival tools and I'm sure you've heard "put it in your calendar" before. I've had really good luck with an electronic pill dispenser. They can get pricey but for ~ $100 you can get a device that'll keep track of 30 doses and even push alerts to your phone if you've missed a scheduled dose or are down to your last few. You can also DIY; micro controllers and eInk display panels are _cheap_ now. My current iteration is wired into my Home Automation system and that affords me several opportunities to nudge me towards medication when i'd have otherwise forgotten.
> One workaround I've heard is that you order every 30 days even if you forgot to take your pills one or two times. Any surplus pills go into an old bottle you hide in the back of a drawer. You only ever withdraw when you've fucked up your re-order.
Yep. +1 for this. The first prescribing psych that I had clued me into this. They explicitly asked me if I wanted a bump to my Rx for the month so I could start building a buffer. I was clueless but it was explained to me that there's a bunch of timers and rules around how/when you can re-fill and you might not always have a continuous supply unless you take matters into your own hands. Years later, I now live in an area where fire season is almost year-round and you can bet that I have ~ 2 weeks supply stashed away in my "go bag".
Off-topic but recently I found out about Sensitive Rejection Dysphoria, its not officially recognized as a thing but it is in active study now, and very related to ADHD, and tbh I wish I knew about it sooner
I found the adhd chatter podcast very helpful
https://youtube.com/@adhd_chatter_podcast?si=Ne0isYQ2QCgIeqY...
"THIS COMMON MEDICATION IS DANGEROUS FOR ADHD WOMEN!" & "THIS STRANGE HABIT IN PREGNANCY INCREASES THE RISK OF ADHD!" are just two examples.
I'm sure it's a good podcast but I find this practice distasteful at best and absolutely abhorrent when you're directly targeting mental health patients with poor impulse control and self-regulation issues.
(I want to emphasize that I know you mean well :-) )
Before I had my ADHD diagnosis, I just assumed that I have social anxiety and tried to fix it myself by giving me exposure therapy. I would force myself to seek out any social interaction regardless on how I felt.
The result was that I got worse, so much worse because I was basically trained myself to disregard my emotions. Turns out being undiagnosed with ADHD is traumatizing. I did not imagine that people hated me for being different, I never had any phobia. It wasn't "just in my head". The truth is that I am different and lots of people will instinctively hate me for being neurodivergent. I just needed to learn to deal with that.
That is why a correct diagnosis is so important. I despise that people are given generic diagnosis like depression or anxiety instead of digging deeper and trying to find out what actually causes them.
I guess it's like ADHD in that way: I thought I was just a lazy sack of shit until I found out I have a condition that I can treat with a pill. Then I could merely accept that it's not something I have control over, and I could move on.
Funnily enough no matter how great my life is nor how confident I feel, every once in a while a catastrophic fear of rejection will leap into my chest and I suddenly feel like I'm that poor terrified 15-year-old me, and I have to shake it off. I have much better tools for dealing with it now that I don't see it as part of my identity, much like I don't see myself as lazy.
Turns out I had AuDHD and I was masking (pretending to be neurotypical when around people). Can't tell you how exhausting that is. I cut off all my friends and couldn't be happier since.
Some people are simply not wired to socialize.
It doesn't seem to be particularly exclusive to ADHD; to me it sounds like it's just anxiety.
Note that the guy who made it up advocates a specific medication regime for it that you probably aren't taking.
https://slatestarcodex.com/2018/08/14/ssc-survey-results-adh...
Which is understandable after the monumental pain and damage oxy caused to families everywhere.
I didn’t know until my thirties that certain issues with executive dysfunction could be caused by adhd, as it is not a widely known disorder particularly for adults.
After I contacted a professional however, and once the relevant testing and assessment was finished, my doctor strongly recommended trying medication as part of the therapy. The whole thing took about $200 for the assessments and medication is cheap. Absolute life changer btw.
Exactly.
I got gate-kept with a massive ten page plus questionaire to fill out. Got half way through the laborious free form text responses. Came back the next day and none of my work was saved.
Gave up. Haven't ever gotten back. Because...
TL;DR they believe the most responsible thing to do is to give everyone Adderall if they're seeking Adderall, with minimal gatekeeping, because the risk of not giving Adderall to someone who needs it far outweighs the concerns of giving Adderall to someone who doesn't need it.
A friend referred me to a telehealth clinic where I could get in quickly instead of waiting for 6 months. They're dialed in to their patient care, too: I get a string of email and text reminders that I have an upcoming appointment. And contrary to some of the horror stories, my doc spent a couple of hours with me on the first appointment before coming up with a treatment plan. It wasn't a 5 minute visit where they through pills at me, but an actual genuine doctor's appointment with someone doing due diligence and customizing a care plan specific to me, with alternatives to try if my insurance didn't cover the first line of meds.
I feel so lucky that I got connected with the right people, after a series of PCP visits and a psychiatrist referral who diagnosed me as having anxiety. Oh, you think? Yeah, I'm feeling pretty anxious that my boss is annoyed at me for having all the signs and symptoms of ADHD and how it affects my work.
Life is easier now, I tell ya.
In fact, I was surprised to learn that Adderall is highly illegal in many countries, including Japan and South Korea(), both of which have a higher standard of healthcare, and a much longer life expectancy, than the US does. In other words, they're not anti-health.
(
) In theory, you can bring Adderall into South Korea with your American prescription. In practice, not really.The main reason for this is because I’m also bipolar. First-line stimulants for ADHD cause manic episodes.
I can survive without ADHD meds, but life is a whole lot easier and a lot more enjoyable with them.
The form my GP gave me (after telling me I probably wasn't) sat in my car for six months, untouched. Went private. No regrets.
That's how I started my treatment, at least.
This depends on the person. ADHD medication by itself doesn't work nearly as well for me as ADHD medication+Wellbutrin.
I advise you to take a look at the role of GABA in ADHD. It’s probably more important than the Norepinephrine and dopamine.
https://www.sciencedirect.com/science/article/pii/S002839082...
At least the doctors I've seen, have all been very precautious in prescribing anything other than the basics. If Ritalin doesn't work for you, they'll obviously try something other...but my doctor told be straight up that it is a red flag when some patients will ask specifically for Adderall, as the potential for misuse is much higher. And for him, it was a last resort.
It's a stimulant. I have no doubt that someone's found a way to abuse it. But for me, I can't for the life of me imagine why anyone would want to. Other drugs like coffee or beer are much more pleasant. If I realize I forgot to take my daily Adderall, oops! Guess I might not get as much work done today as I'd planned, but not to the point where I'd go back home to get it, and I certainly wouldn't feel a craving or desire to.
I woke up feeling sick, stiff, and lethargic while staying with a friend in NYC in 2008. My friend said “I’ve got just the thing” and gave me one of his adderall.
20 minutes later I was feeling better than I’ve ever felt in my life. We had one of the most exciting, memorable days in my life, just pinging all over the city. That night we went out to a club, where I somehow charmed a girl way out of my league.
We met up the next day and she was very disappointed.
That is to say, it was quite pleasant for me.
I sometimes think I have undiagnosed ADHD (my daughter has it), but this would seem like evidence against it, as it was undeniably stimulating.
Funny story though. I have a similar story after my friend walked up to me in a club with a line of coke on his hand. Then I proceeded to charm the girl that became my next girlfriend.
Also, cocaine and amphetamines are very different drugs. They’re both stimulants, but that’s about all they have in common.
I must be dead inside.
(I probably need a caffeine tolerance break...)
And the crowd emerges to reinforce that, no, you're euphoric, this isn't normal, after about a week it'll go away and you'll just feel normal but more productive and have better executive function.
And that's on a starter dose, the parent commenter probably took 2-3x that
Years before I was diagnosed with ADHD, I was offered some cocaine. It did not effect me like everybody else. I assume that it's a similar deal with adderal. You and I are who the medication is _meant_ for. For more neurotypical people, it's not a "leveling" effect, it's - apparently - an elation.
And FWIW I’m very glad for this. I don’t want it to feel good. I just want to be able to pay rent, not get high on the meds that make it possible.
This is so stupid. It's so much better of a medication, the potential for addiction and abuse at therapeutic doses is minimal to none, and yet healthcare systems around the globe are continuing to avoid prescribing it. Ugh.
The question I pose to the “it’s a disease, medicate it” crowd is; is the person maladapted or is the culture maladaptive?
Overwhelmingly the former in my case. I'll have projects that I desperately want to work on for weeks or months, but just can't bring myself to actually get started on without the extra push from Vyvanse.
It would be nice if society could be just a bit more accommodating for people with ADHD, but that would do nothing to fix this problem for me.
if you lived in a society that valued, i dunno, tracking and hunting down giraffes in small groups, would you have the same struggles? what if just participating in society required ~20 hours of athletic activity a week? i'm not entirely convinced you would have this problem, based on the anthropology i've read.
the signal of a maladaptive culture is not 'i feel like the people around me have a moral failing'. It is 'i, and many others, feel like we've all got basically the same moral failing.'
personally, this has been a very helpful reframing. If I simply can't bring myself to do something, that means not that I am bad and my willpower is bad, it just means that something is materially wrong and I should consider addressing it by doing things that my body will let me do.
> personally, this has been a very helpful reframing. If I simply can't bring myself to do something, that means not that I am bad and my willpower is bad, it just means that something is materially wrong and I should consider addressing it by doing things that my body will let me do.
To be clear, I don't think I'm "bad" or that I have a moral failing just because I can't bring myself to do some things. (If anything, that sounds like an internalization of some unfortunate cultural norms...) In my case, it's a contradiction: I want to do a thing for intrinsic reasons, but I can't bring myself to do the thing due to insufficient motivation/focus (for lack of a better term). It can be maddening at times.
But if we take a more typical example that many ADHD people struggle with like, say, doing the dishes or cleaning the house... I guess I don't really understand what might be "materially wrong" here, or how doing something else addresses whatever that is or, more to the point, actually gets those chores done...? This sounds a bit hand-wavy to me.
We can go a lot more fundamental than this, too. What about brushing your teeth? Showering? Eating? I can keep going.
There are some things you can handwave away as being society's fault, but there are far, far more things that, no matter how much society changes, will still negatively affect me.
Probably something like this was lost when people stopped smoking, obviously beneficial for health - but a huge amount of the public was taking stimulants regularly via nicotine until relatively recently.
[0]: Which requires it to be affecting your life -- NOT that you actually do or don't have it and are dealing with it okay. Diagnostic criteria is that it must be hindering you in a job/school/relationships/etc.
I found out that i have ADHD through a process of dealing with a hearing issue - I have something called auditory processing disorder (APD), which means while I have excellent hearing, my brain has difficulty processing speech in high noise environments, especially with multiple people or frequencies that correlate to women. ADHD and autism spectrum disorders are highly correlated with it.
A friend who is an audiologist was out with me at an event and basically spotted the adaptations that I had adopted subconsciously over my life (I’m in my 40s). I then got tested and confirmed. It’s likely a result of many consecutive ear infections I had as a kid.
When reading up on APD, the literature describes stories of various people… and it was like looking back on a story of my life. The ADHD correlation is thought to be related because of the way the brain develops (or doesn’t) in the presence or absence of stimuli.
I say this because it would be easy to dismiss my scenario. By most measurements I’m successful and doing great. But had I known or maybe been treated in the past, certain difficult aspects of my life would have likely been managed better or avoided. Brains are complex, and it’s important not to dismiss that problems that people have.
If it bugs you, a good audiologist or instrumentation specialist can measure the frequencies impacted and mitigate it with hearing aids. I tried it, and i would best describe it like transitioning from 1080p to 4k. The gotcha is the hearing aids are expensive and it is difficult to get a diagnosis that insurance will cover as it’s technically not a hearing loss.
Annoyingly, this can also affect video calls when people don’t speak clearly.
This is a good overview of the literature: https://www.frontiersin.org/journals/neuroscience/articles/1...
Anecdotally, 100mg of caffeine combined with 200mg of L-theanine makes me maybe 25% as productive as I am on 5mg of Adderall, which is actually enough for me to function most days.
Of course they do. They're stimulants, that's what they do. Some people just need them to be closer to normal, or whatever's considered normal in post-Industrial society. Modafinil promotes wakefulness in everyone, not just narcolpetics. Anxiolytics calm down everyone, not just the anxious, and psilocybin makes everyone feel euphoric, not just the depressed. It would be weird if stimulants only had an effect of ADHD patients.
> and ADHD is kind of a weakly differentiated diagnosis that could apply to most people.
I don't think we really understand it yet, but it's not something most people have. As the article mentions, people ADHD have a higher rate of transportation accidents, lower life expectancy, higher crime rates, higher addiction rates, etc. The differences show up in brain scans, performance tests, genetic biomarkers, heritability/twin studies, etc. Whether you think of it as a disability, or brain type, or whatever - ADHD is something real.
> Probably something like this was lost when people stopped smoking, obviously beneficial for health - but a huge amount of the public was taking stimulants regularly via nicotine until relatively recently.
Yes, and this is possibly why 35-55% of adults with ADHD smoke today, compared to 19% of the population. Studies have shown that nicotine is helpful for everyone but particularly helpful for those with ADHD. Nicotine-derived formulations are still being explored.
Medical and psychological professionals are VERY confident that ADHD is a real condition—on par with the confidence they have in diagnoses like major depressive disorder or generalized anxiety disorder.
Across psychiatry, ADHD, depression, and anxiety are all among the best-documented psychiatric conditions. There is more skepticism about disorders with fuzzier boundaries (e.g., “personality disorders” or “internet addiction”), but ADHD is NOT in that category.
I believe ADHD is stigmatized in our culture because our modern world makes us all feel distracted at times; therefore, it seems like people with the diagnosis are perhaps getting a “free ride” by blaming their poor behavior on a “condition”. But ADHD is so much more than just having a hard time focusing because of social media and phones. It manifests as a spectrum of extreme challenges that lead over time to sufferers having a significantly harder time navigating life than people without ADHD.
Merely having a hard time concentrating does not make you an ADHD candidate. You must experience a range of symptoms that interfere materially in multiple areas of life.
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Reference
[1] Faraone, S. V., Banaschewski, T., Coghill, D., Zheng, Y., Biederman, J., Bellgrove, M. A., Newcorn, J. H., Gignac, M., Al Saud, N. M., Manor, I., Rohde, L. A., Yang, L., Cortese, S., Almagor, D., Stein, M. A., Albatti, T. H., Aljoudi, H. F., Alqahtani, M. M. J., Asherson, P., … Wang, Y. (2021). The World Federation of ADHD International Consensus Statement: 208 evidence-based conclusions about the disorder. Neuroscience and Biobehavioral Reviews, 128, 789–818. https://doi.org/10.1016/j.neubiorev.2021.01.022
One example of this actually happening is the concept of a "stimulant nap" in people with ADHD, where stimulants actually make them sleepier. Also manifesting as "I tried coke once, it didn't do anything, I just felt sleepy"
Terrible source but it's a pretty common thing: https://www.reddit.com/r/ADHD/comments/hkkyjl/you_know_your_...
Someone with ADHD taking a large dose will therefore feel the same as someone without ADHD taking a small(er) dose.
Methylphenidate improves sleep in people with ADHD: https://pmc.ncbi.nlm.nih.gov/articles/PMC2276739/
> Compared to [non-adhd] controls untreated [adhd] patients showed increased nocturnal activity, reduced sleep efficiency, more nocturnal awakenings and reduced percentage of REM sleep. Treatment [of those with adhd] with methylphenidate resulted in increased sleep efficiency as well as a subjective feeling of improved restorative value of sleep.
I can't find a corresponding paper studying the effect of stimulants on sleep in healthy adults. I would assume it hasn't been studied because it's common knowledge and it's not worth the risk of making healthy people take stimulants. I also don't think that's the part you were disputing.
Here is more detailed data [https://www.researchgate.net/publication/45708101_Role_of_Ab...].
It doesn’t happen to everyone with ADHD, but the majority.
The effect itself was prominent/notable as early as WW1, as the drugs were widely used by all parties to help fight fatigue and drowsiness. However, a small percentage of the population would end up with the opposite effect - ending up tired, even sleepy, and often calmer instead of more alert.
It took awhile however, before wider implications of sub-population differences in drug effects like this were studied or applied.
I don't think this hypothesis would survive a look through the literature on google scholar. ADHD is associated with huge increases in risks of suicide, substance abuse, homelessness, accidents, crime, autoimmune disease, etc etc etc. It's not just "damn I find it hard to focus sometimes".
The claim is not that ADHD is not a set of people with real psychiatric disorders, but it is a loose umbrella for what are actually disparate problems.
I recently learned that my symptoms, to a large extent, can be explained more accurately as POTS or something adjacent, and the meds I guided my psychiatrist towards were far more helpful than the stimulants I was being prescribed. This was a combination of me, reddit, and later LLMs arriving at me-specific diagnoses that go beyond clinical guideline regimes.
For me, the DSM-V & DIVA criteria are eerily accurate. I was diagnosed as an adult and it felt like a cruel cosmic joke reading through the psychiatrist report and realizing that most of my past and present issues were repeatedly-documented commonalities of a single condition. It was as if my life had just been playing out from a predetermined script.
I fully agree that that many distinct conditions are incorrectly swept under the "ADHD umbrella", but ADHD is not in any way a "loose" description of me.
> more helpful than the stimulants
My currently prescribed stimulants have been the only thing to ever make me feel consistently "okay", after having previously given up on medications ever helping. I'm sure they also enable me to write a few more lines of code per day, but I'd still be taking them even if they made me significantly worse at doing so.
It seems more like a horoscope to me - everyone can find themselves in the criteria. It’s an observable thing, I’m just not sure I buy its special distinction.
People also used to make the claim that the stimulant drugs had special effects (or even opposite effects) on those with ADHD vs. the non ADHD population which always seemed like bullshit to me, but I don’t see that claim being made here anymore.
Edit: after writing this comments others in the thread started making this claim
A. A persistent pattern of inattention and/or hyperactivity-impulsivity that interferes with functioning or development, as characterized by (1) and/or (2). B. Several inattentive or hyperactive-impulsive symptoms were present prior to age 12 years. C. Several inattentive or hyperactive-impulsive symptoms are present in two or more settings (e.g. at home, school, or work; with friends or relatives; in other activities). D. There is clear evidence that the symptoms interfere with, or reduce the quality of, social, academic, or occupational functioning. E. The symptoms do not occur exclusively during the course of schizophrenia or another psychotic disorder and are not better explained by another mental disorder (e.g. mood disorder, anxiety disorder, dissociative disorder, personality disorder, substance intoxication or withdrawal).
I think E is probably a common miss, and fits with ADHD being over-diagnosed vs. other disorders that can have overlapping symptoms. The differential diagnosis section could perhaps be more detailed. But now briefly looking at A's (1) and (2). (1) Inattention: Six (or more) of the following symptoms have persisted for at least 6 months ... (lists 9 symptoms related to forms of inattention, the most generic of which I think is just f: "Often avoids, dislikes, or is reluctant to engage in tasks that require sustained mental effort (e.g. schoolwork or homework; for older adolescents and adults, preparing reports, completing forms, reviewing lengthy papers)") (2) Hyperactivity and impulsivity: Six (or more) of the following symptoms .. (lists another 9 symptoms -- I count 3 pretty generic ones in a. (often fidgeting), f. (often talking excessively), and g. (often not waiting for a turn in conversation or completing people's sentences -- common in online meetings)).
While flawed I think this is enough detail to diagnose someone and clearly say "you're different", it's not nearly as broad as a horoscope "this sign is strong" or "that sign is deep" language and similar. The "Often" qualifier does a lot of work. Nevertheless, two people can both be diagnosed with "ADHD" and yet have few to no overlapping diagnostic symptoms.
Do you think the same about conditions like Autism or OCD?
People often say they "are a little bit" OCD or autistic, but it's the degree to which those traits are experienced which is the differentiation. There is also no objective test, it's all "soft" science.
> People also used to make the claim that the stimulant drugs had special effects (or even opposite effects) on those with ADHD vs. the non ADHD population
This is my experience, but I understand that anecdotes aren't good evidence.
They both do have problems with variableness (particularly autism), but it’s more distinct from the general public.
The type of ADHD I have seems to have an "autonomic nervous system impairment" component and a symptom profile overlapping with hyperadrenergic POTS.
1. I respond much better to Guanfacine ER (GFC) than stimulants alone (currently complementing with Vyvanse (LDX) 40mg, but I'd rate the Guanfacine as critical)
2. My blood pressure is very volatile, and GFC is supposed to have an impact but did not in my case, at least initially. I'd take GFC at bedtime and LDX in the morning, and on ChatGPT's suggestion, I asked my psych if I could take them together in the morning. Gamechanger for my blood pressure: the explanation seems to be that LDX makes my sympathetic nervous system extra simulated (on top of a poor baseline), and co-timed GFC balances it out.
3. I have poor cardiac endurance, and I find running nearly impossible. I'm a healthy young male who does weights and all. At ChatGPT's suggestion, I wore a Polar H10 and measured my resting heart rate while sitting, and then while standing still. I get a jump from 80bpm to 115bpm-ish, a strong indicator for something orthostatic.
I'm currently exploring rowing (with a concept2). I don't know why but it has a strong impact on my mental state that goes beyond general exercising: something about the rhythmic entrainment it produces, while being recumbent (good for POTS).
I highly encourage you to browse the Consensus Statement on ADHD, referenced below. It’s a compilation of 202 facts about ADHD, accepted by a global consensus of experts on ADHD.
Faraone, S. V., Banaschewski, T., Coghill, D., Zheng, Y., Biederman, J., Bellgrove, M. A., Newcorn, J. H., Gignac, M., Al Saud, N. M., Manor, I., Rohde, L. A., Yang, L., Cortese, S., Almagor, D., Stein, M. A., Albatti, T. H., Aljoudi, H. F., Alqahtani, M. M. J., Asherson, P., … Wang, Y. (2021). The World Federation of ADHD International Consensus Statement: 208 evidence‑based conclusions about the disorder. Neuroscience & Biobehavioral Reviews, 128, 789–818. https://doi.org/10.1016/j.neubiorev.2021.01.022
Mostly, unfortunately, funded by Pharmaceutical companies - ADHD Nation: Children, Doctors, Big Pharma, and the Making of an American Epidemic ( https://www.amazon.com/ADHD-Nation-Children-American-Epidemi... ):
> More than 1 in 7 American children get diagnosed with ADHD—three times what experts have said is appropriate—meaning that millions of kids are misdiagnosed and taking medications such as Adderall or Concerta for a psychiatric condition they probably do not have. The numbers rise every year. And still, many experts and drug companies deny any cause for concern. In fact, they say that adults and the rest of the world should embrace ADHD and that its medications will transform their lives.
They claim there are observable differences, but none of these alone can be used for diagnosis.
> The diagnosis of ADHD has been criticized as being subjective because it is not based on a biological test. This criticism is unfounded. ADHD meets standard criteria for validity of a mental disorder established by Robins and Guze (Faraone, 2005; 1970). The disorder is considered valid because: 1) well-trained professionals in a variety of settings and cultures agree on its presence or absence using well-defined criteria and 2) the diagnosis is useful for predicting a) additional problems the patient may have (e.g., difficulties learning in school); b) future patient outcomes (e.g., risk for future drug abuse); c) response to treatment (e.g., medications and psychological treatments); and d) features that indicate a consistent set of causes for the disorder (e.g., findings from genetics or brain imaging)
I don’t find this very persuasive and it’s a problem in the field generally.
Take a look at studying looking at the consensus on diagnosis. Even among psychatrists the same patient gets diagnosed with different things.
It measures your ability to focus your attention quite objectively and there's statistically significant differences between neurotypical and adhd performance. This test was used during my own diagnosis.
QbTest was retroactively designed specifically to target this subjectively diagnosed ADHD group. This may be evidence that an ADHD diagnosis does differentiate populations based on some criteria, but it says nothing to this differentiation being caused by a singular disorder/pathology
I'd like to see a study of this test done on other comorbidities. I found this for example which finds a weak relation in these tests https://pubmed.ncbi.nlm.nih.gov/38317541/ differentiating between ADHD and depression, anxiety, OCD.
Here is another study. https://pubmed.ncbi.nlm.nih.gov/37800347/ >Conclusions: When used on their own, QbTest scores available to clinicians are not sufficiently accurate in discriminating between ADHD and non-ADHD clinical cases. Therefore, the QbTest should not be used as stand-alone screening or diagnostic tool, or as a triage system for accepting individuals on the waiting-list for clinical services. However, when used as an adjunct to support a full clinical assessment, QbTest can produce efficiencies in the assessment pathway and reduce the time to diagnosis.
I'll also point out few things:
1. Attention/focus is not a simple single metric one can measure and varies entirely on the task/situation at hand. That is a computerized test with no actual risk/reward to a person is not a predictor of attention/focus in general life. Focus/attention is driven largely by the feelings, rewards, risks, outcomes someone sees, those with diagnosed ADHD are already entering this study with an entirely different mental perception/attitude.
2. There is inherent bias present in ADHD patients in they may intentionally fudge their performance to meet their diagnosis. Unlike most disorders, people actually seek an ADHD diagnosis for access to stimulants, and its incredibly easy to understand how to mimic that behavior for these tests.
3. Other computerized tests have existed aiding in diagnosis, so this becomes circular.
To your point 1, that's true. When there's ample motivation/inspiration, which is fickle and as far as I can tell not really up for conscious mutation, hyperfocus can occur in people with ADHD.
2: The test was actually quite long. In my unmedicated graph my attention was pretty high at first, but then I apparently got slowly distracted or disengaged. During the test I didn't feel distracted or disengaged however, and yet it showed quite clearly. Might it be harder than you think for people to "fake" this in a convincing way?
Anyway I do look forward to a better understanding of ADHD rather than "not enough dopamine" which seems to be the leading explanation. And I'm curious how much of a bimodal distribution that spectrum of dopamine deficiency is for humanity, or whether it is even bimodal at all.
I refuse to call it ADHD, as that implies some known pathology. It is imo a social construction. Categorization can be useful for assessment/treatment but it isnt science. Quite frankly I dont care if people were handed amphetamines simply because they wanted to see if it improved their lives.
I will just say, I am disgnosed and take stims and the best and most motivatrd I ever felt was when I was doing some sort of physical activity almost daily, had a challenging rewarding job and friends. I was completely sober and happy, and completely depressed, ADHD like all the years prior. If youre not exercising regularly I highly suggest you try it
That said, there are structured and semi-objective tools that add quantifiable data to the process, even if they can’t stand alone; and, these tools in combination reveal a very real condition that is also highly treatable once diagnosed:
1. Rating scales (e.g. Vanderbilt, CBCL) use structured questionnaires to quantify symptom frequency. They’re subjective (based on parent/teacher/patient report) but standardized. Many mental health conditions are assessed using standardized rating scales [3].
2. Continuous Performance Tests (CPTs) and objective activity measures can quantify attention lapses and hyperactivity. They’re more “objective,” but consensus statements say they’re insufficient for diagnosis _in isolation_ [4]. I did a CPT test and it lit up for ADHD, which was helpful in ruling out other conditions.
3. Multi-informant reports (parents, teachers, patients) are required in good clinical practice to triangulate symptoms across contexts [5]. As I wrote in my first comment, ADHD exists only when the symptoms affect functioning in many areas of life.
4. Experimental methods (like neuroimaging or computerized neurocognitive tests) show promise but aren’t yet validated for clinical use [6].
The core of diagnosis remains a comprehensive clinical interview and history guided by DSM/ICD criteria. This is where “inter-rater variability” arises: different psychiatrists may weigh the same evidence differently. Consensus statements acknowledge this diagnostic variability, which is a limitation of current psychiatric nosology in general (not just ADHD).
So to answer directly: no, there isn’t a single objective test. But there are quantifiable tools that support diagnosis. The diagnosis itself is still fundamentally consensus- and criteria-driven, not biologically “proven.” But this limitation is minor and is common in psychiatry where many real conditions are diagnosed using a combination of approaches because no single test exists (and may never).
[1] Faraone, S. V., Asherson, P., Banaschewski, T., Biederman, J., Buitelaar, J. K., Ramos-Quiroga, J. A., Rohde, L. A., Sonuga-Barke, E. J., Tannock, R., & Franke, B. (2021). The World Federation of ADHD International Consensus Statement: 208 Evidence-based conclusions about the disorder. Neuroscience & Biobehavioral Reviews, 128, 789–818. https://doi.org/10.1016/j.neubiorev.2021.01.022
[2] Kooij, J. J. S., Bijlenga, D., Salerno, L., Jaeschke, R., Bitter, I., Balázs, J., Thome, J., Dom, G., Kasper, S., & Nunes Filipe, C. (2019). Updated European Consensus Statement on diagnosis and treatment of adult ADHD. European Psychiatry, 56, 14–34. https://doi.org/10.1016/j.eurpsy.2018.11.001
[3] Collett, B. R., Ohan, J. L., & Myers, K. M. (2003). Ten-Year Review of Rating Scales. V: Scales Assessing Attention-Deficit/Hyperactivity Disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 42(9), 1015–1037. https://doi.org/10.1097/01.CHI.0000070245.24125.B6
[4] Hall, C. L., Valentine, A. Z., Groom, M. J., Walker, G. M., Sayal, K., Daley, D., & Hollis, C. (2016). The clinical utility of the Continuous Performance Test and Objective Measures of Activity for diagnosing and monitoring ADHD in children: A systematic review. European Child & Adolescent Psychiatry, 25(7), 677–699. https://doi.org/10.1007/s00787-015-0798-x
[5] American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.
[6] Cao, Q., Zang, Y., Sun, L., Sui, M., Long, X., Zou, Q., & Wang, Y. (2006). Abnormal neural activity in children with attention deficit hyperactivity disorder: A resting-state functional magnetic resonance imaging study. NeuroReport, 17(10), 1033–1036. https://doi.org/10.1097/01.wnr.0000224769.92454.5d
2. CPT measures attention/focus in an entirely made up lab scenario. Attention and focus are not singular numbers, and are deeply tied to the actual emotions, risks, rewards present in a situation, and cannot be so easily measured. I can see the value of a test that measures noticeable difference between two groups, but that says nothing about the cause of those differences, but simply that we can identify different groups of people. You may also very well be selecting here who are depressed, stressed, low energy, or simply people who see no point in spending energy on a completely meaningless task, etc. In any case, I do not believe the evidence of CPT in differentiation is well established. https://pubmed.ncbi.nlm.nih.gov/38317541/ https://pubmed.ncbi.nlm.nih.gov/37800347/
3. Personal reports of another person's mental state is as subjective as you can get. All were selecting here is people who do not fit the defined, artificially built, educational or work systems. One may even be excellent, motivated student of music but all accounts fail in a classroom setting.
>The core of diagnosis remains a comprehensive clinical interview and history guided by DSM/ICD criteria.
Clinical interviews are guided, and their interpretation is subjective.
DSM is as subjective as you can get. Every single on of the symptoms has the wording "Often", as decided by a person evaluating another person's account of their life. Do you have an objective measure of what "often" means?".
More importantly, a collection of symptoms does not constitute a singular cause. By the admission of the DSM itself, two people with the diagnosis can share only 4 out of the 9 symptoms (me 1-6, you 3,9), meaning every single one of the symptoms has independent causes. How do you know one does not simply have 6 symptoms by caused by entirely different factors? In a population of hundreds of millions, its a guarantee. You could again, define random symptoms, give it a name and have millions of people going "Wow, no way, I meet all of this, I didnt know I have xyz!"
Lastly, I find it really interesting is that the diagnosis of ADHD came far before we had any of this technology and research you point to. Why was it so popularly pushed and accepted then? Is it possible, were simply trying very hard to fit a completely socially agreed upon disorder?
1. On standardized scales being "meaningless": The term "standardized" here doesn't just mean a consistent set of questions. It means the scoring is normed against a large, representative population. So when a parent says their child "often" loses things, the scale helps a clinician determine if that "often" is statistically significant compared to other children of the same age and gender. It's a tool to quantify subjective reports. You're right that any set of symptoms can be standardized, but these scales are specifically designed to measure the frequency and severity of behaviors outlined in the DSM/ICD criteria. They aren't a standalone test, but one data point in a larger clinical picture. Most psychiatric conditions rely on this kind of structured self-reporting. The people working in this field work very hard to apply statistics properly when designing and running these tests; it's so far from random it's not even funny.
2. On CPTs: I agree that a CPT is an artificial lab scenario. That's a well-known limitation called a lack of "ecological validity." No one claims it perfectly replicates real-world focus. Consensus statements are clear that CPTs are insufficient for diagnosis on their own. Their value isn't in definitively saying "you have ADHD," but in providing an objective measure of things like attention lapses and impulse control that can supplement the subjective reports. If someone's self-report suggests severe inattention but they score perfectly on a CPT, that's a data point a clinician needs to investigate further. It can help in the process of differential diagnosis. The studies you linked highlight its limitations, which is consistent with the consensus view that it's a supplementary, not a primary, tool.
3. On multi-informant reports: You say these are "as subjective as you can get," which is true, they are subjective. The entire point is to gather subjective reports from multiple contexts to see if a pattern emerges. A core criterion for ADHD is that the symptoms cause impairment in two or more settings (e.g., home and school/work). If a child is only described as hyperactive and inattentive in a boring classroom but is a focused and motivated musician at home, a good clinician would question an ADHD diagnosis and look for other factors. The goal is to see if the problem is with the person's underlying regulation skills across environments, not just their "fit" in a single, artificial system.
4. On the DSM and clinical interviews: The word "often" is intentionally not given a hard number because it's relative to a person's developmental stage. "Often" losing homework is different for a 7-year-old than for a 30-year-old. This is where clinical judgment, guided by the DSM criteria, comes in. As for the symptom overlap, you're describing a feature of many polythetic diagnostic systems, not a flaw unique to ADHD. It recognizes that the disorder can manifest differently in different people. The clinician's job isn't just to count symptoms, but to assess the entire pattern, determine the level of impairment, and critically, rule out other potential causes for those symptoms (anxiety, depression, trauma, etc.). The diagnosis is a synthesis of all this information. Again, standardized test scoring DOES have the effect of giving a "definition" to the term "Often", because when thousands of forms are filled in, individuals' different definitions of the term converge in a statistically significant way onto a concept that is meaningfully comparative.
5. Finally, your historical point is interesting. Descriptions of ADHD-like symptoms date back centuries, long before the DSM. Sir Alexander Crichton wrote about "the incapacity of attending" in 1798. The diagnosis wasn't just invented out of thin air in the 20th century. It's a modern label for a pattern of behavior that has been observed for a very long time. The research and technology we have today are being used to better understand its neurobiological underpinnings, not to retroactively justify a "socially agreed upon disorder".
I'm really curious what the next century of study will do to illuminate this condition. I suspect we will have significantly greater understanding of the role of genetics and perhaps, one day, a blood test will diagnose ADHD.
I am not disputing that it's possible to group populations on behavioral traits, long standing emotional states, etc. If you want to say "there are people who feel unmotivated, inattentive in their life and we call that ADHD", fine. However identifying a distinctive cause as a scientific fact is an entirely different matter. I.e, your behavior categorizes you as ADHD by the DSM, we found taking amphetamines often helps people with these complaints is a very different statement than something like "you lose things often BECAUSE you have ADHD"
>but in providing an objective measure of things like attention lapses and impulse control that can supplement the subjective reports.
Stick in me an abstract math class and all my neurons will be firing, put me in accounting and ill fall asleep. How is a simplified messure of attention in a single artificial scenario interesting? These labs are for profit companies trying to make a buck.
>Again, standardized test scoring DOES have the effect of giving a "definition" to the term "Often",
I dont see how this follows. You at best merely have some distribution of how often people feel like they lose things. You have no way of either knowing how often it is people actually lose things or how inattentive they are in conversations, and certainly less so that the patient in front of you is so. I urge you to think about this little more deeply.
Lets take inattentive in conversations for a second. How many conversations does the patient have, with whom? What are the patient's interests versus the type of conversations they have? Are they shy, awkward, or likewise the people around them? How long of not paying attention is considered inattentive? What is the objectively measured norm for all these behaviors? And if you can admit its way too hard to measure, all youre doing is basing your decision on your own and your patients feelings. As a psychiatrist, you have to ask yourself, are you really trying to understand the cause of this patient's inattenttion in conversations, or are you merely looking enough evidence to fit them into a bucket that you already understand? Id have a million questions before I can even answer this question intuitively, nevermind objectively.
And this is besides my greater point here. Per the DSM, it is possible for you to have ADHD and not be found to be inattentive in conversations but often be losing your keys, and for me, vice versa. So were admitting these things can have other factors. For example, I may be losing things simply because my mom never had me clean up after myself and I keep dirty place with too many visual distractions. Maybe I have a job or friends or whatever circumstances that make my life more chaotic. Perhaps going out anywhere makes me nervous so I don't think clearly about grabbing the things I need on the way out. Perhaps Im not as bothered by being inconvenienced so I dont care as much to meticulously think about the things I need.
And you will say "true, but ADHD isnt just losing your keys, its a pattern of related behaviors", and I say what is the belief that these different behaviors aren't independent?
Categorizations can be useful, but by definition are a loss of information. We have learned nothing by attaching a name, except perhaps a feeling that we have something simple we can understand.
I've been taking nicotine patches for half a year now, with great success (and it is available OTC unlike other stimulants). Nicotine in itself isn't toxic at these doses (7, 14, 21mg), it's a cool life hack :-).
I sometimes realize in the afternoon that I forgot to change my patch in the morning because I'm a bit drowsy (a feeling not unlike being uncaffeinated when you're used to drinking coffee). AFAIK the withdrawal symptoms fade out in at most a week.
It's not, the problem is that it sounds like it because ~everyone faces some (way) lesser version of the struggles ADHD people face literally every day, many of whom probably do have some subclinical degree of executive dysfunction.
My personal thumb rule is that somebody is capable of finishing school, autonomously managing their living conditions, finding and keeping a job, and having at least a modicum of social life at the same time, they're high-functioning enough that they almost definitely don't have ADHD, or only some ultra-light version of it.
I was “functional” through a four month long psychotic break in which I was constantly one mistake from people finding out I wasn’t human and killing me. (I’m fine now. No lasting trauma fortunately.)
How someone looks from the outside isn’t a good measure of their mental health. How many people have been depressed and killed themselves without any obvious warnings?
I think ADHD is a spectrum, which includes those with "ultra-light" symptoms as well. Whether those in the lower-end of the spectrum need stimulant medication is a different matter.
I regularly have people doubt my diagnosis to this day. If we talk about it more, a lot of them _continue_ to doubt me even after I explain masking.
Again, it's not just your belief -- I grew up hearing radio jockeys calling ADHD "bad parenting disease" -- but this belief is harmful. It ostracizes people and discourages help for a disability that causes measurable harm.
what does that mean? most people have more than 99% identical genes yet we are not clones.
most people don't have a perfect BMI of 23.5 (or whatever is the middle), yet there are clear pathologies on the BMI spectrum, no?
most people could better manage their lives and emotions but most people don't have that severe problems.
the usual diagnostic criteria simply does not apply for most people. the cutoff is pretty high. (problems in multiple spheres of life present before the age of ~14 -- though there's brain damage induced ADHD too)
but of course most people would benefit from some of the ADHD management strategies (which is better time management, planning, organizing things and consistently putting them into their assigned place, cognitive reframing of pervasive bad thoughts, getting a coach, etc.), but at the same time most people would not benefit from being on the usual ADHD meds (maybe they would benefit from some much smaller doses)
I haven't had mental healthcare, so I don't have much personal insight, but I found this interview with Trevor Noah very interesting. It's the first time I've heard someone who identified with ADHD share his experience, and not have it resonate with mine:
Additionally, I had the opposite impression that you did, and as an early 30s man it nearly made me tear up thinking about how much the real struggles described by both of them resonated with me.
ADHD diagnosis is one of the few non-socialized parts of our medical system. Because of the abuse potential they charge a fairly steep fee (cad $3k+, with a $2k+ autism assessment addon) to even attempt diagnosis (after screening by your GP — referral required).
The intake paperwork alone was perhaps 100 pages of online questionnaires that lead to interviews where they schedule counselling and evaluation sessions with you.
It took me almost a year to complete because 100 pages of “often always sometimes never” multiple choice questions (with attention checking red herrings) proved to be an almost insurmountable barrier for me.
I ended up completely surrendering to their scheduling requests: “just book it and tell me when it is. I will adjust my schedule around you. Agreeing on mutually free times with six providers is a functional impossibility. Just book it. Now. Go. Lock it in.”
It took a year to get through the maze and now they’ve booked me ASAP: three months out.
If I have an opportunity to give feedback it will be that they badly need people on their team with lived experience. It makes sense that a system designed by people who were able to complete multiple years of medical education and training is effectively blind to conscientiousness and executive function deficits.
Then again, perhaps the maze is another preventative measure: if you are able to speedrun it, perhaps you shouldn’t get medical meth.
I had the complete opposite experience last winter in Ontario. I asked my doctor about ADHD, he had me fill two forms, set up an appointment with a psychologist, who after a couple weeks of appointments was ready to prescribe Atomoxetine (at my request since I wanted stimulants only as a last resort).
I paid for nothing in this entire exchange, and the meds are usually covered by an extended drug plan if you have one.
There is nothing controversial or difficult about getting a diagnosis in this province. And the stimulant-class medications are easy to access and inexpensive if a generic option is available.
The problem(s) mostly relies with the modern way of life and what is expected from the society at large. In that context I try to feel ok when I daydream while I have countless of boring things to take care of as I totally feel ok when I hyperfocus in a creative endeavor.
The meds are just a tool that I use no more than two times per week in order to take better care of myself and others. It is not a therapy and it's not me. I believe that Sensitive Rejection Dysphoria is very real for people like us, but the worst version of it is when you reject yourself because you are different and you try hard to be someone else.
I assumed not just ADHD but a number of other psychological conditions are more about reconciling some individuals to this particular society. It seems baked into a lot of their diagnostic criteria, like how well one "functions" at school or work. Surely ADHD would not be cognizable where people don't have to spend 8hrs/day through their youth sitting in one place.
Or, for that matter, in a society where people regulated their days by cues like the sky and the body, rather than the carefully organized "rain or shine" clocked time needed by the Industrial Revolution.
(This thesis isn't mine: the historian EP Thompson wrote a classic article on how the transition from a rural to an industrial working class in Britain was accompanied with timetabling and "clock discipline".)
https://academic.oup.com/past/article-abstract/38/1/56/14546...
Take school for example. If someone doesn't fit into the mass education model, they say they have attention deficit. That same person might then go home and hyperfocus on computer programming for 12 hours straight like a machine. It makes no sense.
The mass education model where hundreds of people sit on a chair listening to lectures for hours on end just isn't right for people with ADHD. Medications are just there to help cope with an imperfect reality which refuses to change for our sake.
I also think its cope to take a disorder where a specific part of the brain tasked with very specific functions is physically less dense and performs than other people and go "ADHD isnt real he's just quirky!1"
1. a lot of these studies suck. Brain imaging is very hard, the interpretation and analysis of the results involves lots of degrees of freedom, the study sizes are typically not as big as you'd like, and most of the results are only really visible in aggregate. I do not give much credence to them, as a scientist. One way to think of this is that if someone separates two groups of people into "ADHD" and "NOT ADHD" and you average their MRIs you might detect a difference in the two groups. But one person's MRI would be almost useless to assign them to one of the two groups. You could certainly try it, but it would not be very effective.
2. Literally every difference in behavior between two people or between a person and themselves at a different time is necessarily reflected in a difference in brain behavior, at least if you buy the materialist paradigm that brain -> mind or at least brain == mind. Thus, you would expect differences in personality to show up in MRI scans as well as differences which rise to the level of "disorder."
3. The brain isn't made up of "specific parts with specific functions." While its certainly true that we can roughly map different areas to different functions, its really not separable in any way that (for example) a human designed machine might be. We cannot remove and replace your "attention center" and it doesn't really mean anything to talk about it without all the rest of your brain. The part/whole relation is bullshit in all contexts (in my opinion as a mereological nihilist) but especially in neuroscience.
I guess its sort of a useful rhetorical frame to point to physical differences between brains as some kind of determination of the distinction between "mere" personality differences and "disorders" but I just don't think it makes sense in a fundamental way.
I'm a person with ADHD and Autism diagnoses and I think they are handy things to use from time to time, I think of them as entirely relational descriptions pertaining to my position with respect to the world, not fundamental ontological categories. On the other hand, I think of essentially everything as relational and I don't really believe in fundamental ontological categories so maybe I'm the fucked up one.
I claimed it's not the "attention deficit" people think it is. People with ADHD are clearly able focus when the subject is interesting enough to them. That's a huge contradiction. The truth is probably that school is way too boring for them.
I think signal to noise ratio is a good analogy. People with ADHD are easily distracted by noisy stimuli and need disproportionally high signal to focus. Society consistently fails to provide high enough SNR then labels neurodivergent people as problematic.
ADHD discussions always remind me of this article:
https://www.marktarver.com/bipolar.html
I think the bipolar diagnosis is off the mark. Substitute bipolar with ADHD though and the profile fits quite well.
Stop spreading medical misinformation. You're extremely uninformed.
Here are some lectures, go educate yourself: https://m.youtube.com/playlist?list=PLKF2Eq0eYbbrNLoJjFpWG_U...
That's my point. Labeling people as having "attention deficit" leads to unnecessary stigma and marginalization.
> The hyper focus you described is just as uncontrolled and pathological as lack of attention.
I didn't say it was controlled or healthy. I said it was evidence that people with so called attention deficit were, in fact, capable of paying attention. And it is.
> You think that's evidence I _don't_ have an attention disorder?
Nobody claimed that.
> Stop spreading medical misinformation. You're extremely uninformed.
> Here are some lectures
Refer to lecture "Why is ADHD considered a disorder?".
When does it become a disorder? When it starts causing harm, adverse consequences, for the individual. When the environment starts kicking back.
In other words, if you can adapt the environment so that it doesn't kick back at the patient, harm is mitigated.
In other words, ADHD patients might adapt reasonably well to certain environments and not others, and we can reduce impairment by putting patients in an environment that is stimulating for them.
This logic is not even unique to ADHD. Numerous diseases have adaptation of the environmental as a vital part of the non-pharmacological treatment. For example, adapting the environment is vital for preventing falls in elderly patients.
So I don't see where the lectures disagree with me. I shadowed a neurologist who specialized in ADHD patients, he combined pharmacological treatment with this environmental approach and it was very successful. Schools labeling kids as problematic was a huge problem for us.
"interesting enough" is not a sufficient condition. You may be super interested, very motivated, and yet completely unable to start. That is one of the most frustrating parts of ADHD to me. When and how hyperfocus kicks in seems to be mostly outside of your control.
Unfortunately, in reality while there are some very limited advantages, as a whole ADHD is a whole-brain dysfunction where your neurons are literally incapable of maintaining their level of operation as long as in a healthy person, with ALL of your executive functions - all self-regulation, planning, delaying gratification, emotion management, etc - being impaired across the board, not just tuned differently.
Hyperfocus is commonly brought up, but neurotypical people experience it as well. Less often, but also without the compulsive loss of control, while being able to maintain a higher level of effort and work without it at all times.
People also like to claim we'd be better as lookouts or sentries but this isn't true. People with ADHD don't pay more attention to a broader range of things, they're just incapable of focusing it when necessary, not to mention they drift off and get distracted instead of staying watchful far, far more.
That's before getting into the fact that ADHD correlates negatively with pretty much every single life outcome, not just those depending on society - things like neurodegenerative disease, cardiovascular and metabolic problems, sleep disturbance, etc.
I understand the desire to frame things you're experiencing in a positive manner, but... in this case, it doesn't really work, and I somewhat resent it personally, as it makes people less likely to take ADHD as seriously as it needs to be.
Have to disagree. Noticing every small noise a neurotypical Brain filters out makes you a good canary.
The person in my life with ADHD would start scribbling equations in the dirt or braid the loose threads on their clothing after five minutes, and easily fail to notice the noise twenty-ive minutes after that.
One thing I certainly couldn't do was pay attention to nothing happening for an hour just incase something happened.
If you put me in a village in Europe 5000 years ago, I’d be fine. I’d be better than fine. I’d be the guy in the hunting part who could smell the fresh scat from 50 yards away. I’d be the guy who could remember all the fucking barks and plants and mushrooms that are good for what ails ya. I’d be the guy who knew the story of every god and goddess and why they’re important. Most social situations would involve people I knew very well or people in the same culture, where I could depend on knowing the rules of the culture.
The modern world is full of random noise and stifling bureaucracy. I love being autistic. But it’s awful, truly awful to have this nervous system in this society. The endless stress breaks you down day after day, year after year, and system teaches you to see yourself as inherently broken, when it’s the system that has broken you.
Maybe you’re disabled, but maybe it’s the system that did it to you.
A lot of my autistic issues are caused by society because they are mostly sensory - bright lights, random noise, synthetic smells.
The social model of disability doesn't cover all my symptoms and issues though, I am very much disabled. Pre diagnosis and medication my rejection sensitive dysphoria would cause me to perceive sleights and fly off the handle very easily.
5000 years ago I would have had a rock to the head.
People act like ADHD patients are feeble minded and that just isn't the truth. In the right contexts we can also focus quite intensely. Especially with treatment.
It's true that neurotypical people also experience hyperfocus, that's not in dispute. I don't really like these comparisons to be honest. I just think the fact ADHD patients also experience hyperfocus really should make people rethink the pejorative "attention deficit" label.
So, people with ADHD have always existed, but it's our modern world full of distractions and unnatural work which makes it a much bigger deal than it would otherwise be.
People don't want to think of themselves as of "diseased" or "disabled". So you get this strange phenomenon: people who are completely deaf, or lost an entire limb, and argue quite passionately that they're "not really disabled". Coping.
ADHD screws with executive function, attention and impulse control. All three are incredibly important for a person to function in a modern society. A person with severe untreated ADHD would be unable to hold almost any job. It's a disability.
But admitting that requires the kind of mental fortitude a lot of people simply don't have.
So it has to do with the mismatch between yourself (including the accommodations in place for you), the world and whatever is considered a reasonable life for a person in that world.
The heavy end of the spectrum, the lying on the floor suffering crippling bladder pain but unable to muster the willpower to walk to the bathroom and piss even though that would immediately fix the problem end of the spectrum, is a disease and a disability. I cannot picture an ancestral environment where this is adaptive.
Sure, my ADHD experience is probably the impetus for most of those projects in the first place, but that doesn't help me get anything done, whether I want to or not.
It sounds like what really happened is that you found an appropriate amount/cadence of medication for your body. That's much more difficult than many realize, which is why each stimulant is sold with 5 different delivery methods: immediate release, capsule with drug dust coated in timed digestion substance, capsule with hole to pump via capillary action, skin patch, and the bonus prodrug lisdexamphetamine that metabolizes into amphetamine at the rate of digestion.
ADHD can absolutely be a handicap. It might be that it's exacerbated by modern life's demands, but I frankly can't be bothered to care -- I live with these symptoms that I wish would go away, and I can't switch to some world that would work well with them.
And it's not rejecting myself or trying to be someone I'm not. I spent quite a while before diagnosis doing that. Getting treatment for and acknowledging the issues of ADHD is being more aware of who I am and what I need than pretending that things will work out. They don't, and they didn't.
And I know my experience isn't unique.
Here, access to stimulants like Adderall or alternatives are expensive to be viable to the average household (if there is fore-knowledge, which is undocumented), doctors rarely diagnose ADHD in adults (that kind of access is on the premium side, so many have zero idea).
I self-medicate with coffee and green tea to get that dopamine hit, and mix in novelty tricks (gamifying tasks) to keep my monkey brain engaged. But the cultural stigma? Folks just call it laziness or blame "village people" (supernatural enemies).
It's exhausting, but I've leaned into the positives—like my ability to hyperfocusing on creative work for hours.
US folks, your bureaucracy sounds brutal, but at least diagnosis is an option. Anyone else from outside the West dealing with this?
> But the cultural stigma? Folks just call it laziness or blame "village people" (supernatural enemies).
Funny, my daughter just stops my explanations after circa one minute, abruptly, saying that her brain just does not listen anymore and there is no reason for me to continue. Which is blunt, but kind. I understand and stop talking, that's that. We can do that since we know our limits, I would assume that Africa in general is more attuned to accepting people as they are? For my daughter it makes a world of difference that she can communicate her ADHD symptoms. The medication are there to make ADHD people behave like "normal" people, but acceptance in the other direction could quite helpful as well.
With some luck and effort you can have some effect with diet. It would be nice to see a graph between the rise of white flour and the amount of ADHD in the world. I would love to step off medication, but it's not doable without switching to sufficient combination training and good diet, I have neither now :) As they point out in the article it can be great to find out your vitamin levels to address shortage.
> These types of complex carbohydrates are less likely to spike your blood sugar levels and help keep you feeling fuller for longer, which may help improve your focus and attention.
> By avoiding simple carbohydrates, like sugar and white flour, you may reduce specific ADHD symptoms. [0]
I just finished fixing my bike (Suntour Perfect) and have started taking it on smaller trips, hopefully that will be _my_ way to a more stable day to day. [1]
[0] https://add.org/adhd-diet/
[1] https://i.ebayimg.com/images/g/NxQAAeSwpg1odZbS/s-l1600.jpg (about the same bike)
@isodude no surprises; Emphasizes my point. It's thoughtful and resonates a lot.
> Funny, my daughter just stops my explanations after circa one minute...
I'm really glad to hear about your daughter and the strong, understanding relationship you've built with her. Explaining ADHD to her early on and helping her navigate it is awesome; being truly seen and validated by family can make all the difference in reinforcing one's self-knowledge and building resilience. It must be rewarding to see her thrive despite the challenges.
This reminds me of chats with my sister. I've tried helping her understand why I am the way I am; the distractions, the hyperfocus bursts, the whole spectrum, but she'd always say "don't accept it" and to just "pray it away." I usually laugh it off and say "Amen," because I know she's coming from a place of deep love and concern, rooted in our cultural lens. It's not dismissal; it's her way of wanting the best for me.
Isn't it fascinating how vast and varied the human psyche is? Almost no two people are exactly alike in how their minds work. I read somewhere that some folks don't even have an internal monologue, they think purely in pictures, without any inner voice or words. Blows my mind every time I think about it.
> ...I would assume that Africa in general is more attuned to accepting people as they are?
Spot-on! Nigeria/Africa in general embrace/reject people as they are, rarely pathologizing differences. We're not huge on formal psychology or therapists here [0], so spiritual and religious leaders [1] often step in to fill that gap - counseling couples, mediating family disputes, and offering guidance on some personal struggles. Mostly with a spiritual/cultural lens. In my opinion, it's better than nothing. Sometimes being heard alone helps untangle some deeply rooted misalignment.
> [2] (about the same bike)
Saw the bike picture, nice setup! I try to get in walks when I can for that mental reset, though it's been rare these days with everything piling up. Quick question: Is it the same color? I'm a black, purple, and blue person at heart now, but red was my jam growing up.
[3] adhd-diet
I went ahead and converted that ADHD diet page [3] to PDF and Markdown to stash in my knowledge pile; super helpful read.
What's striking is how individualized it all is; what works for one person can be the absolute opposite for another. Caffeine, for instance, is a game-changer for me as it helps me cope, prime myself, and zone in without the jitters, but the article calls it "complicated," noting side effects for some (especially on meds). Never been on meds so I cannot relate. I had no idea about white flour falling under those simple carbs to minimize, but sugar I've already been keeping low-key for energy stability.
Anyway, I truly appreciate you sharing. It's validating to connect on this across contexts. Cheers to you and your daughter; keep crushing it.
[0] though sensitization and awareness are gradually picking up, which is encouraging - partly thanks to the new wave of local movies and skits being produced around the subject:
Skits: Brain Jotter, Craze Clown, House21 TV, MC Lively, ...
Movies: Mind Work (2025), At Ease(2024), Vanity(2024), Oga John(2023), ...
[1] Pastors, Imams, Chieftains, etc.
[2] https://i.ebayimg.com/images/g/NxQAAeSwpg1odZbS/s-l1600.jpg
Almost argue most adults are doing the opposite which makes me concerned for the population.
It took me as a real surprise when, after that first trip, all my ADHD symptoms simply vanished, never to reappear.
I am much more effective at getting things done at work and in this regard has been quite positive.
Negative and positive on a personal relationship level. I have much better awareness of conversation dynamics and am more focused and able to listen much better. The downside would be the impact on existing relationships. The medication has an impact on personality and emotional dynamics that have been hard to navigate. With more awareness and focus in existing relationships in some ways has provided insight into unhealthy relationship dynamics and re-negotiating these is not easy.
In short if you change you vibe this has a ripple effect in other areas of your life. My experience at least.
While this study is the largest to date, it found substantial risk reductions with ADHD medication: 38% for suicidal behaviors, 30% for substance misuse, 28% for criminality, and 20% for transport accidents - with even stronger effects for recurrent events.
Small problem of potential conflict of interest with pharmaceutical for all authors involved. … persist.
Study did however show major problem with dispensing heavily abused set of ADHD Rx, lack of reaction time test (gamers’ and career-performists’ hyperfocus), and exclusion of large group out of the ~148,000 ADHD-diagnosed subjects of this study.
I am reminded of numerous studies that carve out a large portion of cigarette users thus neatly giving the “evil” tobacco-perpetuators/“scientists” a carveout (4 out of 202 DSMs) to “continue” as safe for medical use.
"I tell people that going for a run is like taking a little bit of Prozac and a little bit of Ritalin because, like the drugs, exercise elevates these neurotransmitters."
https://www.additudemag.com/exercise-learning-adhd-brain/amp...
https://pmc.ncbi.nlm.nih.gov/articles/PMC9017792/
Give it a try.
bookofjoe•5mo ago