Lito Souza is a brazilian influencer. He has a Youtube channel dedicated to aviation education, history and news, with 4 million subscribers. He's the most kind soul you can ever meet.
At the beginning of August, he started having difficulty controlling his left arm, and the doctors, at first, thought it could be a complication of his recent prostate cancer diagnosis. Unfortunately, last week it became confirmed that Lito was suffering from Creutzfeldt-Jakob disease.
CJD is a relatively obscure disease, and in Brazil, for the average Brazilian, it was pretty much a complete unknown ailment.
Now the whole country is in tears watching the developments. His wife, Mila, started a campaign trying to get Lito on any one of the clinical trials currently being made.
Specifically, there are 2 CJD clinical trials being done in Harvard at the moment:
Everybody knows what the prognosis for prion diseases are. Mila knows it. Lito knows it. They are just asking for a chance at having hope. They only want to be allowed a compassionate use exemption.
I've seen more grown men cry those last few days down here in Brazil than I ever saw in my whole life. I never cried for a parasocial relationship before, but... if you are Brazilian, and you followed this guy, you would understand. The world will be worse the day Lito is not here with us anymore.
kikokikokiko•1h ago
At the beginning of August, he started having difficulty controlling his left arm, and the doctors, at first, thought it could be a complication of his recent prostate cancer diagnosis. Unfortunately, last week it became confirmed that Lito was suffering from Creutzfeldt-Jakob disease.
CJD is a relatively obscure disease, and in Brazil, for the average Brazilian, it was pretty much a complete unknown ailment.
Now the whole country is in tears watching the developments. His wife, Mila, started a campaign trying to get Lito on any one of the clinical trials currently being made.
Specifically, there are 2 CJD clinical trials being done in Harvard at the moment:
@ionis_pharma — ION717 trial @broadinstitute — PRiSM trial
Everybody knows what the prognosis for prion diseases are. Mila knows it. Lito knows it. They are just asking for a chance at having hope. They only want to be allowed a compassionate use exemption.
I've seen more grown men cry those last few days down here in Brazil than I ever saw in my whole life. I never cried for a parasocial relationship before, but... if you are Brazilian, and you followed this guy, you would understand. The world will be worse the day Lito is not here with us anymore.