I don't want my son, who has narcolepsy, to be tired all the time.
But the medicine that helps him, Xyrem (GHB), is $20K a month.
Pay it, don't pay it, neither option truly reflects my priorities. It only reflects the hand I've been dealt by other people's priorities.
> Retail price of $21,239.97
The site is misleading in that they indicate you can just buy it from any pharmacy. But that's not how it works.
More details at: https://en.wikipedia.org/wiki/Sodium_oxybate#Cost
If you wouldn't mind reviewing https://news.ycombinator.com/newsguidelines.html and taking the intended spirit of the site more to heart, we'd be grateful.
If you want to preach message board ethics, maybe you should have some empathy yourself.
Maybe I was too harsh. We had a quite a lot of politics-related flamewar last week, which always makes the job less enjoyable, most-of-all when users take out their political anger on us.
Sorry if I seemed to lack empathy. I did appreciate the apology and I hope you'll keep using HN and making an effort to contribute positively. And thanks for sharing your feelings about my comment, it's helpful to know, so I can better calibrate in future.
If you wouldn't mind reviewing https://news.ycombinator.com/newsguidelines.html and taking the intended spirit of the site more to heart, we'd be grateful.
In this week’s newsletter, I want to give you some personal insight from my own experiences that I think will help explain where true personal satisfaction comes from—it comes from many places, not just one—and how you create it every day, win or lose, by the way you show up in each part of your life.
Note the em dashes.
I also write using dashes like this. It seems to mimic speech more naturally to me - it seems intuitive. I'm also somewhat on the spectrum and I find myself (and apparently many others) more often than not trying to mimic social and language cues.
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