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Fecal transplants for autism deliver success in clinical trials

https://refractor.io/adhd-autism/fecal-transplants-for-autism-delivers-success-in-clinical-trials/
68•breve•3h ago

Comments

davisr•1h ago
So all I gotta do is eat some poop and it will save me from becoming a handsome, funny, unique genius?
quux•55m ago
You don't eat it, don't be silly.... you stick the poop up your butt
saalweachter•43m ago
I believe the best procedure is actually sticking it in your nose.

(They run a tube through your nose, down your throat, through the stomach to the top of the intestines, and introduce the bacterial slurry there.)

someguyiguess•30m ago
Pretty sure there’s a shorter path to the top of the intestines than through the nose but I’m no Biologist.
tyre•28m ago
If you’re implying it is through the rectum, you’ve definitely got some bio to brush up on. The small intestine alone is >20ft long.
throw310822•26m ago
Makes you wonder how hard would it be to just put it in a swallowable capsule that dissolves only in the upper intestine.

Also, "fecal transplant" is marketable only to weirdos. "Probiotic infusion" would work better.

For those who want to gain some artistic talent, there's this (but is expensive):

https://en.wikipedia.org/wiki/Artist's_Shit

rincebrain•1m ago
From my understanding, the problem is volume.

You want to land a substantial amount of, ahem, shit in there, since don't just want it to colonize one portion of the gut, and it's got quite a lot of competition.

So you would be talking a truly astonishing number of pills, I think, to compare to the volume you can manage with a tube.

WP suggests that it's about 100g (or 100000mg) of actual feces then mixed in a larger volume of saline or milk, and you'd probably need to have additional volume for assumed losses and whatever coating you think would work.

That is a _huge_ amount to put in pills.

LoganDark•55m ago
Well no, what they're saying is it seems to be capable of reducing autism-related struggles and misbehavior, not that it can somehow remove autism. Truly removing autism in any meaningful way is probably impossible since the brain was trained with it since birth.
roywiggins•45m ago
No, that appears to be the implication of this study, which frankly seems like such a large effect that I'm pretty skeptical! I'd say "where's the control group" except the claimed effect is so large that you kind of don't need one, if it's real:

> Prior to the study, 83% of participants had "severe" autism. Two years later, only 17% were rated as severe, 39% as mild or moderate, and incredibly, 44% were below the cut-off for mild ASD.

Emphasis mine. If you are below the cutoff for mild ASD you wouldn't be diagnosed at all.

saalweachter•37m ago
That was the study without a control; for the placebo controlled study, they don't give the numbers, just say "statistically significant improvements" on several metrics.

(Without a control group, you have questions about how people of that age generally progress, and what other treatment/therapies they receive over those 2 years. The phase 1 trial was with children whose parents presumably sought ever possible way to help them, while the placebo controlled phase 2 was adults who may have plateaued.)

LoganDark•36m ago
> If you are below the cutoff for mild ASD you wouldn't be diagnosed at all.

That makes sense, since ASD is a disorder classification and is mainly relevant for treatment and benefits. Plenty of autistic people are not diagnosed with ASD.

The article certainly could do more to differentiate between the autistic spectrum itself and the diagnosis of ASD, but as long as you know not to conflate the two, it seems perfectly clear to me.

jdw64•54m ago
Personally, anyone looking to get a fecal transplant from Sir Demis Hassabis will have to line up behind me. I want to be first in line.
Arodex•43m ago
>Editor's note: Readers often ask us for follow-ups on memorable stories. What has happened to this story over the years? This article was originally published in 2019 but it has been re-edited and updated with new information current as of April 7, 2025. Enjoy!

Now that is something that should be done more often - especially in science journalism, but not only. We cruelly lack long-term vision - not only forward but backwards too.

embedding-shape•25m ago
The typical publishing methods kind of favors that approach of publishing new articles instead of updating existing ones though, for better or worse.

Maybe science journalism should just adopt a wiki-model instead, where there is one article per "subject" then any new (confirmed?) information/data goes into that, and interested people can subscribe to updates there instead.

Wikis generally have much better long-term maintenance given the right individuals running it, compared to a "publication journal" where things tend to get out of date eventually, with no way of actually seeing when old articles get updated.

Sharlin•11m ago
No problem with publishing new articles, as long as they're properly contextualized and link to their predecessors – and the latter updated to link to the new information as well.
geremiiah•42m ago
What's more plausible? Did they cure low functioning autism in two years? Or did they simpily miscategorize the kids and the kids grew out of their diagnosis as they matured?
leikarnes•37m ago
I'm guessing that the kids now have less stomachpain, constipation, and are feeling less bloated/nauseous. Thus have less voilent reactions
roywiggins•34m ago
Their first study allegedly resulted in "44% were below the cut-off for mild ASD"- ie, practically cured, from a diagnostic point of view.
geremiiah•32m ago
That's what I'm saying. It's a misdiagnosis. Whether or not they have tantrums should not be a factor in whether or not they are high-functioning or low-functioning.
freehorse•23m ago
It does not have to be misdiagnosis. If kid has both autism and gut issues, the gut issues could make the autistic symptoms worse, by causing distress to the kid, which could make the interactions with caregivers harder for both in a quite formative period. Treating the gut issues could help this way without gut being directly related to autism and without it being a misdiagnosis. It is telling that they report quite high (0.7) correlations between improvement in gut and autistic symptoms.

However they say they also have an adult trial running that seems to show similar effects, so there might be something more into it.

rafram•17m ago
No, there’s a clear link between gut microbiome and behavioral/mental issues that has nothing to do with physical digestive symptoms. It’s been seen with other disorders, like depression: https://hms.harvard.edu/news/drawing-line-gut-microbiome-inf...
Muromec•36m ago
Kids got into tech industry and now it’s their spouses that have to deal with their tism, instead of parents
inglor_cz•34m ago
If it was anything else but gut bacteria, I would be inclined to agree with you, but gut microbiota is slowly turning out to be an extremely important factor in our health and it also turns out that modern highly processed diet tends to damage it and make it less diverse. Even higher frequency of Caesarian section seems to make gut microbiota less diverse and there seem to be some diseases downstream from that.

At the same time, gut microbiota is extremely complex to study.

So, this may be a plausible result. I cannot judge the plausibilities right away in the way you suggest it.

freehorse•27m ago
They say that they started a phase 2 trial with placebo control in 2022 and they see better outcome than placebo

> Our phase 2 study for adults with autism found that the treatment group improved more than placebo on the primary outcome (autism symptoms) and on a secondary outcome (daily stool record),

delichon•28m ago
I got bad chronic constipation after four years as a strict carnivore. I didn't get relief just by adding back fiber, but I did by adding fermented foods like kimchi. I wonder if ferments are a more natural way than fecal transplants to repair the gut microbiome, possibly treating autism. Studies have been non conclusive, but this story makes me think it's worth pursuing.
motoboi•17m ago
The microbiota is passed from mother to son on birth, not totally from the environment.

What we currently don’t understand is why for some people they never got them (we have techniques to transport the biota from the mother during birth for non-natural procedures) or they loose them.

Even with the transplant, the microbes won’t stick around on those people (not taking about autistic people here, but people in general).

Diverse food really helps, just as not eating ultraprocessed (they won’t reach the end of the intestines).

Fermented and other pre or probiotics will really help too.

But none of those will recover the biota in some people.

jwrallie•5m ago
In some countries the number of kids born through c-section are very high, more than half the kids in Brazil are born that way for example, so definitely people can be healthy without getting it from their mothers.
fontain•11m ago
Why did you follow a strict carnivore diet? Health? Accident? Aside from the constipation did it benefit your health?
dennis_jeeves2•5m ago
>I got bad chronic constipation after four years as a strict carnivore.

2 questions:

1) Did your constipation start right after you did strict carnivore? Or was it after 4 years?

2) List all foods that you ate on strict carnivore. (Include salt, water etc. I presume it won't be a long list)

ZoomZoomZoom•26m ago
Absolutely outrageous/hilarious clickbait title. It's not for autism but totally opposite.
manoDev•7m ago
I wonder if there’s any study linking C-section birth, autism and microbiota? Or newborns that have to stay in incubators?

I understand a newborn gets its microbiota naturally by contact with the mom in the first days, maybe all the sterile environment involved in surgery changes that.

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