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What it's like to have your insulin pump die while you're on vacation

https://blog.lauramichet.com/what-its-like-to-have-the-machine-that-keeps-you-alive-die-while-youre-on-vacation/
21•speckx•2d ago

Comments

nivethan•2d ago
This is a terrifying and illuminating read.
ahoka•42m ago
I stopped reading where he just googled what can be wrong with his life support medical aid instead of calling some kind of support line.
oompydoompy74•36m ago
The author is a woman. She does call a support line during the course of all of this. The support line was fairly unhelpful.
kbcohhcoh•14m ago
the support line did everything she asked, and explicitly asked if she already had a backup plan in place, to which the author said "yes".

the author admits to not even asking for the pump to be sent directly to her.

the author admits to even ignoring the internet advice to call support, then gets mad that she wasted insulin while doing so

kbcohhcoh•10m ago
"I will probably also be meaner to everyone who gets me on the phone in the future during an emergency. I was trying specifically to not do that, but I suppose it's helpful to be mean when your medical equipment is failing."

advocating for yourself is not being mean

TimorousBestie•33m ago
I’ve called my father’s insulin pump customer support number once before and the medical advice they gave us would have endangered his life if I had carried it out (according to his GP, whom we called after to confirm).
1123581321•38m ago
I’m diabetic and found this strange for a few reasons. There’s a postscript in the blog post wishing death from diabetes on any diabetic who tries to point any of it out—so I’ll leave it at that.
oompydoompy74•31m ago
I empathize with the author. I have severe panic attacks and getting advice from someone who has maybe had a little anxiety once is infuriating.
an0malous•13m ago
I wish you life from diabetes to cancel out her curse
Symbiote•26m ago
I don't think the attitude in the first several paragraphs, wishing harm to the pump engineers etc, can lead to a good discussion.
lm7272•13m ago
Bizarre intro to the blog. Been a pump user for 20 years, forever grateful to the technology that allowed me to live a pretty unrestricted life. Sympathy of course to anyone who's had it harder than I have ofc
bluesounddirect•12m ago
My wife is a t1d and has the same pump. It sucks their support staff has no idea how the thing works or what its failure modes are. My wife once had her x2 tell her it gave here a 40 unit bolis out of the blue . This would have killed her. While in the er support from x2 said something like "there is no way for it to do this .. you must be wrong.. are you reading the display correctly .." All in all the x2 plus dexcom was supposed to be a closed loop cgm plus pump. It rarely cuts insulin delivery on low blood sugar, or it does it way too late to matter .
bluesounddirect•11m ago
also it didn't give here 40 units the pump failed .

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