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Our sister died because of our mum's cancer conspiracy theories, say brothers

https://www.bbc.com/news/articles/crenzwyvpn1o
44•muglug•3h ago

Comments

brightmood•3h ago
This particular nature of making quick conclusions can be found everywhere.

That article is no shocker. It exposes the same weakness in openly questioning things and using your brain.

Related: People argue like this:

- "All people who make stairs hating on wheelchair users"

- "Men who don't like other men crying or showing emotions are hating all women"

The problem isn't just conspiracy theories - it's this broader pattern of binary thinking that refuses to acknowledge nuance or complexity. When we jump to these extreme conclusions, we lose the ability to have real discussions about difficult topics.

These, or similar quick conclusions are flawed to the core and hurt those around.

tetris11•3h ago
I'm seeing this with my cousin currently. Her husband as well as her brother are peddling vitamin injections, physiotherapy, keto diets, for what is essentially late-stage lung cancer. She needs sugar - energy - to build up her stores so that she can walk into a chemotherapy clinic, but they're (perhaps rightfully) scared that they'd just be feeding the tumor instead of her.

Doctors orders should be questioned, of course, since they're also trying to reduce their own liability should anything go wrong. But this cynicism is being diverted into desperate alternatives, into the inklings of what is looking like outright superstition.

I understand it to some degree, of course; when a doctor recommends a treatment to slightly prolong your life, vs an expert who promises to completely heal your ailment -- you're likely to go with the so called expert.

randomtoast•2h ago
I don't know, if the doctor can only provide treatments that extend life for a limited time and may cause significant side effects. I might prefer to forego all treatments and focus on living the remainder of my life to the fullest.
xenonite•1h ago
Why should she need sugar to walk? It is perfectly viable to let the muscles burn ketones instead. There is no need to eat carbs (unless there is a problem in the fat digestion system etc.)
josefritzishere•2h ago
Is it premature to blame RFK?
bilekas•2h ago
> Is it premature to blame RFK?

Nobody was blaming RFK for this particular case, reading it you can see the reason RFK was called out is because he's the main health 'professional' representative who, himself, spout debunked lies. Again giving confirming biases to other people who believe this nonsense.

Where he should know better with the access to the best professionals in the world, he still spreads misinformation, of course people will call him out.

fullshark•2h ago
This isn't blaming RFK, it's yet another traditional media piece blaming social media for something bad happening.
fullshark•2h ago
Someone choosing an alternative cancer treatment than their doctor's recommended treatment and dying is very common, and the most likely culprit isn't social media but someone doing their own research (i.e. google / chatGPT), and going down alternative medicine rabbit holes.
ljf•2h ago
True - but once you start engaging with any of this stuff on social media, you just get pushed more and more.
voidUpdate•2h ago
Has anyone done an analysis of the prevalence of these "alternative medicines" in countries with free healthcare vs no free healthcare? I keep seeing this stuff coming out of America, but not from somewhere like Scandinavia (possibly because of the language barrier). I do see it a decent amount in the UK, but our healthcare isn't amazing, even if it is free
Apreche•2h ago
It proliferated in America because of a law in the 1990s called the DSHEA which greatly loosened regulations on what could be sold and advertised. Before then, all this was illegal. Once it became legal it became a multi-billion dollar industry. So now even if a politician is against it on moral grounds, they are afraid of harming the economy and eliminating all those jobs.
giarc•2h ago
Most conspiracy theories at least could be true (ex. vaccines cause autism, wifi/5G is dangerous, 9/11 was an inside job), but how do people make the jump to "Royal Family were shape-shifting lizards"?
salawat•2h ago
Jungian symbolism. Royalty is an institution composed of humans (faces change over time, shape shifter) that think, act, and are treated differently than anyone else; generally making decisions that can severely change the trajectory of human lives around them (reptiloid, cold blooded).

It's only hard to make the leap if you're too biased toward rational faculties. Your irrational faculties can make the leap fairly trivially.

iamthepieman•2h ago
My brother passed away from AML (acute myeloid leukemia) almost two years ago. His quality of life was dismal on treatment, he was constantly vomiting, mouth sores, unable to sleep but very tired, couldn't see his two young children and locked away in a hospital ward. His wife had to make a huge effort to see him consistently because she couldn't bring the kids and had to find babysitters. He made the decision to stop treatment because of that. His chances were low anyways and he pursued 'alternatives' because it was better than nothing. Even if the main benefit was to make him and his family feel like he wasn't completely giving up.
larrled•2h ago
It is interesting we now call this stuff “conspiracy theories.” We used to talk of “snake oil” or people would make jokes about yoga and health food in the 70s. Currently it’s taken on a newspeaky sort of political flavor with the phrase “conspiracy theory.” In the 90s it was “alternative health” or “eastern medicine.” Interesting how views changed on ways of knowing/cultural relativism in such a short period of time.
karolinepauls•2h ago
The way loosely-defined "we" call(ed) things in different periods of time isn't a good basis for conclusions, especially in topics in which there was basically no good science 50 years ago.
larrled•1h ago
We agree it’s not a constant “we.” And also a lot of the current usage is secondary to pandemic politics where certain demographics and career slots benefitted or alternatively were hurt by covid related policies. My conclusion is only that language and culture change and influence one another.
nabla9•2h ago
Steve Jobs is probably the most famous victim of his own superstitions.

He had a pancreatic cancer. It was detected early and it was one of the rare cases that had a good prognosis. He changed his mind only after it was too later and regretted his bad decision.

bilekas•2h ago
> The children absorbed outlandish ideas, including that the Royal Family were shape-shifting lizards, says Gabriel. "As a young child, you trust your parents. So you see that as a truth," he says.

At what point does someone step in and call this child abuse, at the very least these parents are not capable of raising their children in a safe manner.

> Kate Shemirani styles herself as "the Natural Nurse" on social media

And therein lies our main issue. People on social media who are amplified and given confirmation biases from the algorithm with basically zero moderation now.

Maybe it's callous to say but seems like Darwins law should settle these things.

mnmalst•1h ago
> Maybe it's callous to say but seems like Darwins law should settle these things.

This was my thinking as well.

hermannj314•2h ago
It is very easy to say that people are dying of cancer because of anti-science beliefs during treatment, I do not refute the claim that the outcome would be better if this individual listening to the best medical advice available.

However, I do think the blaming the patient is a distraction. I see more anti-science from industrialists and politicians when their industries receive scientific recommendations for regulation.

There was more anti-science in the decades of poor policy decisions that lead up to a young woman getting non-Hodkings lymphoma than anti-science displayed by her in the moments when she had to choose how to respond to it.

soco•1h ago
It's not a zero sum game. You can and do have both anti-science attitude: the self-serving profit-increasing from the industrialists, and the self-aggrandizing alienating from the alt-news consumers. And politicians will follow whatever pays them and votes for them - aka both of those.
herdcall•1h ago
Questioning science is not automatically "anti-science," IMO it's best to remain skeptical and stay focused on the evidence. The fact of the matter is that current "best medical advice" is not the best either in terms of quality of life or prognosis. I've had a remote member of a family lose sight in an eye, develop short term memory issues, and rapidly deteriorate from cancer in spite of following the best medical advice and guided by top physicians. My family is full of physicians, and I see even them questioning traditional methods. I would caution against media's rush to blame anything going against the mainstream narrative as "anti-science" or "misinformation." Yes, there are quacks and morons, but let's not put labels on anyone questioning bad outcomes.
gadders•46m ago
Fair comment. You would think medicine would be evidence-based, but a lot of it is pattern matching and working on the 80/20 rule, given the limited time they have with clients.

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